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Delayed scans

BARBIE70 profile image
14 Replies

Hi everyone just a little updat on my MBC

I had a telephone chat my my oncologist yesterday , was expecting him to give me the dates for my 4 monthly scans to see if Ibrance and Letrozole are still holding my mets stable .

He deciddd that as I was feeling so well and bloods all good with no new symptoms he decided to postpone it till October as I’ve had a great deal of CT s in the last 18months and to just monitor myself and how I feel .

I was relieved that a stay of anxiety was on the cards!!

Has anyone else been left for 6 months without scans to check progression ?

Feel Ivshould be over the moon but I’m also a bit anxious ! Sometimes we’re never happy😂

Hoping you ladies are all keeping safe and managing to enjoy the summer wherever you are in the world xxx

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BARBIE70 profile image
BARBIE70
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14 Replies

Hi Barbie,

That's great news! Your oncologist is obviously very pleased with you to want to wait longer for your next scans. Mine suggested waiting 6 months, but I told her I didn't feel comfortable leaving it so long. You have to do what you feel is best for you.

Sophie

LotusAFlower profile image
LotusAFlower in reply to

I’m glad you are stable and feeling well. I’m sure if you had symptoms come up that concern you it would be ok to call your doctor and he could order a scan at that point. This journey is so stressful .. I think it’s nice to get some good news and embrace it whenever we get that chance ❤️hugs 🤗

in reply to LotusAFlower

Hi,

Yes, I agree. My oncologist told me that if we did delay scans and I started feeling unwell I could call up and move scans forward. I've come to read my body better than before, so I feel more in tune with what is going on. I've been stable with no progression for three years, so almost from the start of treatment.

Sophie 💐

BARBIE70 profile image
BARBIE70 in reply to

Oh that’s wonderful encouraging news .Thank you so much and you please keep in touch xx

in reply to BARBIE70

Thank you! That's kind of you to say so. Private message me anytime you want to.

Sophie ☺️

BARBIE70 profile image
BARBIE70 in reply to LotusAFlower

Yes it is but we take the positive and keep going .Sending hugs and love xx

Tam-56 profile image
Tam-56

BarbieI have a scan every six months unless I am having symptoms or concerns. Congratulations on your good results!

Enjoy the great news!

Maura❤️

BARBIE70 profile image
BARBIE70

Thank you ,that gives me so much confidence it’s the right thing xxx

8576 profile image
8576

I have had even 8 months between scans. Good to have a rest from them, I think. Wishing you well.

Cheers, June S.

BARBIE70 profile image
BARBIE70 in reply to 8576

Thank you June that so reassuring .Take carexxx

Dragonfly2 profile image
Dragonfly2

I’m still on the every three months schedule but I was a hurting puppy when this all started. My onc is being very careful to make sure I have no progression. I would be very happy if she said one day that I could go 6 months until the next scan… but I fully agree that the anxiety around this disease is very powerful. It spreads so insidiously and pops up where you don’t expect…we’ll, enjoy the good news! Like everyone said, you know how you are feeling and are your best advocate!

BARBIE70 profile image
BARBIE70 in reply to Dragonfly2

Ah thank you so much for your wonderful thoughts which are so true 💕We just keep positive through all our fears and rely on being in tune with our own bodies .

Sending love and hugs xxx

blms profile image
blms

My bone scans are very 6 months so far but CAT every 3

Mamacass67 profile image
Mamacass67

Hi there,

I'm in the UK & saw my Onc yesterday & my scan was stable, no new sites after being on faslodex, ibrance & denosumab for 9 months. I've had mbc since dx in 2008 & he said he was happy to move to 6month scans but would leave it up to me to decide. It's such a rollercoaster of emotions but important to try & get on with your life (until the next scan approaches of course 😄)

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