Port fitted & had 1st taxol IV - SHARE Metastatic ...

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Port fitted & had 1st taxol IV

Sunnydrinking profile image
20 Replies

Hi ladies

Very long day - at the hospital from 8 to 4 - port fitted successfully in my chest - sits under skin! Also had first IV chemo & used cold cap to try & avoid losing hair. I’m knackered now ... next Friday should be easier - they are planning on me having Covid test, bloods & IV on the same day - as I’m currently still under the label “trial” how fortunate is that?

Thanks again for all your very helpful comments.

Jo xx

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Sunnydrinking
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20 Replies
Wintervt profile image
Wintervt

Thinking of you and sending love! xo Jade

blms profile image
blms

Keep me informed on how you do with the taxol treatments. I just finished my first round of 3 and will start 2nd round this Monday.

lynnhbtb profile image
lynnhbtb

Glad it went well, but sorry for the long day. The first day is always the longest.

Mindysooty profile image
Mindysooty

Sending you hugs and best wishes xx

TLLS profile image
TLLS

So glad it went well, I remember the tired feeling too. I felt quite good the next day from all the steroids, however on day 2 I was tired and slept most of the day. So don't be fooled if you do feel good, take it easy on yourself and rest as much as possible xx

Teddielottie profile image
Teddielottie

Gosh that was a very long day ... but hope you are able to sit out and chill in the sun this weekend . Take care ! Sending love x

Justme153 profile image
Justme153

Glad all went well ! Kick back and relax! Take care!

Tigg14 profile image
Tigg14

Hi

That was a long day at hospital...but going forward will be great to get your tests and chemo on the same day.

I finished 5 cycles of pacitaxol in March and managed well. No side effects apart from tiredness on 3/4 day after each dose - just rest when you need to. And it done an excellent job for me.

I’m in Twickenham, not far from Windsor....I’ll be thinking of you over the next months when your going thru your treatment, take care x

Sunnydrinking profile image
Sunnydrinking in reply to Tigg14

Hi

Thanks for your helpful reply. Where did you have your treatment? I was originally under Wexham Park/Windsor but moved to Mount Vernon when I went on a trial and I’m staying with them under the label trial for now....

Perhaps we can meet up sometime.

I’m on Instagram jowilliamson7428 if you want to find out more about me.

Jo xx

Tigg14 profile image
Tigg14 in reply to Sunnydrinking

Hi jo

Sorry just deleted my reply accidentally!

Having treatment at West Middlesex hospital.

Would love to meet up sometime...see how you feeling on treatment and let me know. Happy to drive to Windsor or nearer to you as I’m feeling back to ‘normal’ now.

It’s hard to talk to people who aren’t in our situation....I don’t want to bore/upset/confuse people and would be nice to see others who understand.

Anyway, take care and hopefully speak soon

Ang xx

MaryCos profile image
MaryCos

Thinking of you, Jo! Hope you are feeling well after the first infusion. And, glad to hear that your port placement went well!

Andibo profile image
Andibo

Sending you big hugs.

Tigg14 profile image
Tigg14

I’m @madds53 on Instagram, I’ll request you xx

Joannaaaa profile image
Joannaaaa

Take care, rest and enjoy your weekend

stardust1965 profile image
stardust1965

Jo, I saw coverage of the Duke of Edinburgh’s funeral on TV yesterday. It was a perfect spring day in Windsor. I hope you managed to enjoy it after your marathon day at the hospital. Rest up. Vicki

Sunnydrinking profile image
Sunnydrinking in reply to stardust1965

Hi Vicki

I watched Prince Philip’s funeral too. The weather was glorious - I was so pleased. Very sad day, he was a huge support to the Queen and did so much for Great Britain and the Commonwealth, yet still had time for interesting hobbies and his family, particularly his grandchildren. I love our Royal family and they work so very hard, putting service before self.

The Queens actual birthday is Weds 21 April when she will be 95 - I’m sure she will miss her beloved husband so very much...

Jo xx

stardust1965 profile image
stardust1965 in reply to Sunnydrinking

It was a very fitting send off for sure.Only the queen has two birthdays which is great for all those summer garden parties!

debbiedo2063 profile image
debbiedo2063

Hi JoThinking of you and hoping you are njoying the UK Sun when you can. I live in the North East of England in a Seaside Town and for once our beach is Sunny this weekend hurrah, just as well as it looks like the Costa Del Sol with all of the outdoor seating at the moment . Normally I wake up and have to work through the North Sea Fog to find my way lol. Take care xxx Debra

Hi Jo!

I'm late to the game here, but wanted to catch up on *you*, your situation, and let you know that I'm thinking of you and hopeful that the treatment goes well (and that your hair does well, too!) :)

Truly wishing you the best! (heart!)

Lynn

Good luck!

I did cold caps on 2014 before they were widespread in the US. It was challenging finding a mole skin cap, etc. I kept my hair though.

I hope that part goes well too.

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