Ibrance withdrawal

[Blessed1023]

Stopped Ibrance because liver tumor returned. Was so emotional an teary yesterday has anyone experienced this reaction from stopping Ibrance

[kduck]

My scans show mets in my liver, like you I was devastated. Next line of treatment is IV Chemo. Do you have any idea what your next treatment will be? I’m so sorry and wish you well

[blms]

I think all of us can admit on being devastated when we hear progression. This is a bitch .dealing with possibility of leaving our friends and family. I can only tell you that L theanine is a huge help with emotion . It’s not a drug so that’s good. It’s a neuro transmitter. I take 200 in am without food and then again before bed

[NShaft]

I am usually more emotional during my week off Ibrance. That with any news that is scary would make anyone emotional. Ride it out and then keep on.

[Beryl71]

So sorry but hope you do well on next treatment. X

[BayG]

So sorry to hear about this. I was on Ibrance for a year and then mets progressed. Was in one lung and now both. In November began Afinitor and Tamoxifen. My first three month scan last month showed stable, no new growth. Am told my next line is chemo (pill form). Hoping Afinitor lasts for a while before more progression. Hugs to you and my thoughts are with you.

[queeneee]

I feel teary when I am getting used to medication and when I am coming off it! All that fiddling with hormones..I hope it settles down soonx

[Tobysasha65]

Yes me...was on Ibrance and Letrozole for 32 months. Had my PetScan in February 2012

Last PetScan was February 2020 due to moving from PA to Florida to live out my life around my daughter and son-in-law. Purchased my on home, just 12 minutes from my family.

The February scan was a total kick in the stomach since I had no Evidence of disease I was stable since June 1st 2018

Now dealing with spine, C4 vertebrae, thorax and yesterday at my oncologist appointment confirmed liver Mets.

I was changed 3 wks ago to

Verzenio, Faslodex 2 shots in the buttocks and xgeva in the back of my arm.

Well that didn’t work so well since my

Immune system rejected Verzenio and cause a body rash. Usually happens when a new drug is added to my body.

Now the new journey begins,

I’m off the Low Volume approach and on to the High Volume...due to my liver Mets 3 and the size of them.

I will begin HALAVEN it is given as a intravenous push or as an intravenous infusion 2-5 minutes...

I have my port since 2014 when I was diagnosed a second time with BC in the left breast ..

My first diagnosis was right breast in 2005.

My journey has been 16 yrs and so many downs in between, but I am still blessed.

Blessed1023 I to did cry yesterday when my world was again turned upside down, since then no more tears.

My daughter is having the hardest time now and that concerns me. I’m just tired of being a cancer patient for so long,

I’ve lost so much due to this Disease,

But not my soul, sense of humor, laughter and love.

So this is a long response to your simple question.

I miss my Ibrance and yes the withdrawal is real. Then I ask the question when did it actually stop working to have it spread so far from my original BC...

Should we have scanned every 3 months or 6. I can’t go back. We will now be back to the 3 months cycle. A dr told me a long time ago all the scans are not good for us, well what is?

The sunshine, the rain, the smell of fresh cut grass...babies etc life in general

Many blessings in your journey...pm me if I can be of any help...

Bonnie

[Tobysasha65 in reply to Tobysasha65]

Omg my dates are had my PetScan in 2021 not 2012 my daughter just texted me to correct it

[Tobysasha65]

My PetScan was done 2021 not 2012 oh my goodness my dater just texted me about the error 😂