Ibrance

[Villazon]

I start Ibrance later this month.

Trying read and learn about this new medication

[nstonerocks]

My side affects: initially sore mouth. Went away. low wbc. Got better after first round but runs low normal. Fatigue. Comes and goes. I find if I juice eat and sleep well it helps. Thin hair. Yep. Still thin. Been on it almost 3 years. Hope to be on it a long time. Good luck to you! ❤️

[amitgarg27 in reply to nstonerocks]

What type of juice help...plz share

[nstonerocks in reply to amitgarg27]

Green juice. I have a juicer. My go to recipe is kale cucumber lemon and pineapple A head of kale, half to whole cucumber, half to whole lemon and a wedge of pineapple about an inch thick. You have to like kale to drink it. You may want to reduce kale initially. You can substitute any green leafy vegetable the ratio should be 3 vegetables to one fruit. You can also do green smoothies with a nutribullet. Using a juicer you get more nutrients and enzymes. A nutribullet gives you the whole veggie or fruit so more fiber. If you don’t love greens you can find juice recipes where the taste is less strong. Check out Kris Carr’s website. She has a stage 4 liver sarcoma and has made welllness her mission in life. Garden of Life has a green powder I sometimes put in a smoothie I make w yogurt and blueberries or strawberries. . I swear green juices give me more energy and helped me get thru all 12 rounds of Abraxane in 2014. You want to avoid pomegranate and grapefruit on Ibrance. The best juicer is a centrifugal one that is lower rpms. It extracts more nutrients and enzymes. I hope it helps you feel more energy. Between the letrozole and Ibrance there are days I come home from work and flop. I am also trying to get back into yoga and meditation. Anything that helps with the physical and emotional stress of this “new normal”. Let me know how it goes. ❤️

[Epinto in reply to nstonerocks]

Great information on the juicing. I love green juice but don’t drink it often enough. I will check out the green powder and web sites. Be well and stay strong!

[Sjjohnson52 in reply to nstonerocks]

Thanks for info. I start Ibrance in couple of week too.

[StE72 in reply to nstonerocks]

Interesting. What is the problem with having pomegranate while on Ibrance / Letrozole? I knew about grapefruit but not pomegranate...I have drinking the juice and smoothies.....!!!!

[nstonerocks in reply to StE72]

Not sure but it was on a drug insert I got with my Ibrance.

[StE72 in reply to nstonerocks]

I will ask when I see oncologist next week....

[nstonerocks in reply to StE72]

Do you feel drinking green juices help? I definitely feel better when I drink them daily. Better than the vitamin pills I take

[StE72 in reply to nstonerocks]

I haven’t tried them yet......will have to....have been using kale, cauli, broccoli, cabbage etc in stir fry’s and salads......

Thanks for the recipe!!

[nstonerocks in reply to StE72]

That’s just my own and has strong green taste. Kris Carr’s website has some free juice recipes which are more delicious. She is an inspiration to me. Has slow growing but stage 4 liver sarcoma w Mets to lungs. Her journey is inspiring.

[StE72 in reply to nstonerocks]

Thanks. Will look her up. We all need some inspiration!! 😄

[Jerseygirl45]

I have been on Ibrance 100 for 23 mo. Feel pretty good. Hair thinning, my WBC stays about 2.5. I was taking letrozol with it. I now get Faslodex ink with it. Hope you do well on it.

[Barbteeth in reply to Jerseygirl45]

Hi

I started Ibrance 125 mg 2 weeks ago but had to stop as wbc low and I’m anaemic

I’m seeing consultant this week to discuss

I assume I’ll be put on a lower dose..is this as effective and is that why you’re on 100 mg now?

If the lower dose is as effective then why are we put on the higher dose..seems a bit excessive to suffer side effects unnecessarily

Barb x

[Jerseygirl45 in reply to Barbteeth]

I was put on 125 first time also. WBC went low. Waited a month then was put on 100mg. Have been on that since. About 22 rounds.

[StE72]

Good luck.....Inhave on Ibrance 125mg plus Letrozole and Denosumab injection for three weeks now. So far so good apart from developing nose bleeding. Last blood test my WBC and RBC were still ok. Learn to pace yourself as fatigue takes over if you try to carry on ‘as normal’......

[Villazon]

I would like to thank all of you for your comments

[caw517]

HI ! I've had a few rough weeks so I just saw this post. I have been on Ibrance with no progression for 28 rounds. First round they had to drop me to 100 mg due to extremely low WBC and I have been on that ever since. I have had the usual fatigue, thinning hair, some mouth sores but have hung in there. Also on aromasin. Unfortunately this past month my counts dropped very low again. Had to stop an extra week. now we'll see if I can go back o the 100 mg. Wondering if anyone is on 75 and for how long it has worked at that level.