hi ladies,
Sorry, I’ve been out of touch....a lot going on..
I have been fine on Ibrance, Luprin and falssodex but this month, my body seems to be rejecting them. I had a hard time weaning off Effexor Could it still be messing with me a month later?
Severe dehydration, migraine and nausea.
Any tips? feeling worse and worse. When do cave and call the doc...
Lynn
I would call the doctor right away there could be something simple he can give you to help you cope with these side effects. Hope your feeling better real soon. I started xeloda today and am sitting here petrified of what side effects I may have hopefully nothing too bad. Good luck to you
thanks barb, I drank water with electrolytes and slept. Still have s headache, could be due to the weather. I hope...
That is what I heard from my onco's physician assistant (she would be furious if she knew he told me this that she is thinking of putting me on that drug.) I read one of the side effects was swollen foot and ankle and I already have that issue and my whole leg is discolored and I emailed my onco saying Do not even think of putting me on that drug bc I am already suffering from a severe swollen foot and ankle that I cant even get shoes on.
I hope you have little to no side effects but I think that is impossible for us. I would be interested if you can post your experience on it. No matter what, I do not want to start any new treatment until January 2021. I just need a break.
I hope it helps you and would love to know how you take it (is there a week off) and how it makes you feel. I am so tired of changing drugs and dealing with side effects.
I’ve bern ok, just some fatigue. After 3 1/2 years, I’m getting headaches and nausea plus some hair thinning. I hear Verzenio has the worst side effects out of all the aromatase inhibitors but everyone’s different. It has bern working on my cancer..
Odd, after Ibrance I was put on verzenio. First 125 mgs. twice a day with no weeks off. I could not handle the stomach pain or the severe diarrhea. I stopped myself after two weeks. Next she lowered it to 100 mg. twice a day and same thing and stopped myself after two weeks and said to her I am not going to take something that makes me feel this way.
She said well your last chance is the lowest dosage which is .50 mg. twice per day. that was the key. OMG...What a difference. I was not tired, no more diarrhea, no stomach pain, etc. I felt ecstatic that finally there was a drug that basically I could feel normal on. I was most excited about not having that extreme fatigue I had with Ibrance and the severe diarrhea on the larger doses of Verzenio was impossible for me to deal with since I do not drive and I could just hiccup or something and BOOM. It was crazy.
So I am upset. I started it in December 2019 and took two 50 mgs. twice per day and felt almost normal again.
Unfortunately (I had it with mets to the lungs and then mets to the lower spine) but now they found new masses in my lungs so they have nothing to compare it to since my last CT scan they were not there (I get CT scans every three months).
So having a scan done just of my chest so radiologist doctor has something to compare it to and my onco already said a new change of treatment. I cried bc I finally had myself in a good place.
So give it a shot. I am sad that I will no longer be taking it and going forward I am refusing any drug with major side effects. That is it. I am not married, have no family, siblings, nieces or nephews, etc. so my fighting spirt is much less than many of the women on here.
Everybody is different so it may work fine for you at the highest dose and if not have the onco lower it. Let me know how it goes for you. I am looking forward to hearing about it. I wish I could have stayed on it longer.
I’m with you, side effects after dude effects. Meds to combat other side effects!! I’m gonna give it 1 more cycle and then may e change.
Lynzer I want to send the same message to you as Kearnan: I want to validate your decision whatever you decide.. We come to terms with how we can live the best and find our power to do so.
And make our days as peaceful and purposeful as we can, enjoying the most of what we can. Well done you.
Solidarity. In this together
Kearnan, I want to validate your decision whatever you decide.. We come to terms with how we can live the best and find our power to do so.
And make our days as peaceful and purposeful as we can, enjoying the most of what we can. Well done you.
Thank you. The difference I guess between me and most others is that I have no family, never married and have no children so maybe in way I have less desire to try everything there is to extend my life if the quality is not there for me anymore. My onco knows I feel this way.
Kearnan When I realized that I no longer needed to be needed. I realized I needed to leave the responding to needs to others,
That is when, I had this certain freedom to make my remaining days more peaceful.
You too are in a situation of greater freedom.
May we make our days as peaceful and purposeful as we can.
May we feel the Beauty of Nature and the simple moments we can.
May we feel connection with others even through cyber space no matter how long we live.
Thank you for your honesty and clarity.
May we feel peace.
Oh Lynn, so sorry you are feeling so unwell. Please call the doctor and hopefully they can give you something to feel better. Thinking of you💕
Theresa
Lynzer, sorry to hear those things. I agree with Barb5 -- call the oncologist ASAP. I think more of my side effects are from the anastrazole than the Ibrance. Notice a lot of joint pain and fatigue on the seven days I am off the Ibrance. As other people have said, lots and lots of water and as much movement as you can tolerate. and naps are a good thing!
I'm sorry to hear this, my mom has lots of side effects from the drugs (ibrance, letrozole). This past summer the nausea and some anxiety contributed to her not eating or drinking water, and she got very depleted. One of the palliative nurses came over and got her IV hydration therapy at home for a few weeks and it really helped perk her up and improve her appetite. If your healthcare provider doesn't offer that, I know you can also go to a Vitamin IV clinic and they offer it there. I hope you feel better soon.
My doctor has neve mentioned this but I’m going to ask. thanks!
What is the drug Luprin for?
Again, find a compounding pharmacist and ask how they can help! 90% of doctors know nothing about compounds thst can give you relief from side effects in minutes...and they are transdermal and do not pass thru your liver!
How do I do tjat?
Lynn, I was also on Effexor and had a terrible time weaning off of it. I went to every other day for two weeks then every third day and had nausea problems. Those problems continued for a couple of months as I continued weaning. I took Compazine off and on as needed for about three months. At the same time I was starting Xeloda but we decided the Effexor was the one giving me problems. I’m finally over it.
Me too! Just now after months, the symptoms are passing. Now I’m stuck with hot flashes...
Starting Ibrance and Letrazole next week
CT Results
Should I be concerned? 
Ibrance and neuropathy? Please help.
Afinitor 10mg and exemestane 25mg
