Stage 4 metastasis

[24681]

Hi I had breast cancer 7yrs ago. I thought I had beat it, unfortunately it just came back in my supraclavicular node. I am on Ibrance and the injection Fulvestrant. I was wondering if anyone else was diagnosed with this. I’m very scared and depressed, the doctor said it’s not curable. I will be on thus the rest of my life. Whatever that is.

[Arisgram]

It was my supraclavicular node....and my mother's.....that prompted our MBC diagnosis. I also had bone mets in sacrum and several vertebrae. I made it 16 months on Ibrance before progression to my liver and a change to everolimus.

You may well last years on Ibrance/faslodex. Many on this board can share their success and lend you support. It is an incredible group of women.

I'm so sorry for your diagnosis and completely understand your feelings. Once the shock has cleared, you'll get your feet under you, and when you stumble, we're here for you. Just be kind to yourself right now and know there are lots of drugs out there and more on the way. Never hesitate to reach out. Someone is always listening.

Andi

[24681 in reply to Arisgram]

Thankyou so much!!❤️

[Hidden]

Hi there

I have just moved over to this board from the breast cancer haven board which I joined in 2015 when I was diagnosed with primary, like you I thought I had beaten it until a few months ago I was diagnosed with mets to lung, liver and some bones. I'm still in shock, up and down. I'm having chemo at present, 2 more cycles to go and I'm also having herceptin and perjeta infusions every 3 weeks which I will remain on as maintenance as my oncologist puts it!

I am finding this board a comfort, it's like walking into a room of friends that just get where you're at.

[Red71]

I had primary breast cancer 10 years ago and was diagnosed 2 1/2 years ago with one node under my arm and bone mets. It’s a real shock after having been told that I was cured. They really thought I was low risk for reoccurrence. It will take you some time to get over that shock and move on to living but you will. Most of us have a pretty good quality of life with exhaustion or tiredness being the most frequent side effect of out meds. We have learned to accept and really appreciate most of the moments in the time we have. The current medications have made that time longer and of higher quality. We will be here for you as you go through the stages of shock and acceptance and dealing with the questions and problems that crop up.

Elaine

[Mindysooty]

Hi, I was dx in 2010, found it early, small lumpectomy, radiation, no chemo required, Tamoxifen 5 years. Then last year, dx MBC - chest and neck lymph nodes, chest wall, right lung, liver, spine in 5 places and now I've found out in the hip too. Been on Ibrance/Letrozole since April last year, highest dose. Doing ok, just had a bump in the road with a high temp and some pain but recovering now.

Won't sugar the pill, it's not the easiest journey, especially those first few months when you don't know which way to turn, but honestly, you will come to terms with it in your own way - it takes us all down different paths at different times, but you'll navigate your way like the rest of us and find you can get on with your life. Once you realise some ladies on here have lived for years with this disease, it will make you feel better and you'll probably start finding out about things for yourself, arming yourself with knowledge and before you know it, you'll be a regular on here advising new people. My heart goes out to you right now though because I do remember those first couple of months after I was dx and it's not easy for you or any loved ones around you. It's the "no cure" bit isn't it but there are so many treatments out there for most people to try. Please keep visiting the board and you'll find out so much information and hopefully as you see people interact and live their lives, it will help you to come to terms with everything. Very best wishes. xxx Josie xxx

[mariootsi in reply to Mindysooty]

Amen Josie. Well said.

[Bestbird]

I am glad you found this site although I'm very sorry for the circumstances that brought you here. The first weeks after diagnosis are terribly challenging, and over time you'll find that many people can fare well for quite a while! I was diagnosed in 2011 and things looked pretty dire, as I had lung metastases, malignant pleural effusion, and malignant pericardial effusion. You are on a very good treatment, and if there is only one malignant site, your prognosis may be even better than the norm.

Hoping you do really well for years and even decades to come!

[mariootsi]

I'm on the same treatment. I was diagnosed almost 5yrs. after my original dx. Thought I was in the clear, ha!

The mbc dx is such a shock. I have to say that Ibrance and Fulvestrant shots have kept many of us going.

I wish you well and we are here for you!

[hdhonda]

Welcome. You have come to the right place for friendship, information and hugs. Mine is in my lungs and I am on Ibrance125/Letrozole. There are many treatments available and new ones coming out. A lot of research being done on breast cancer is encouraging news for all of us. Blessings Hannah

[caw517]

Like so many others on this board, I too was surprised when a node under my arm seemed to suddenly be huge and bone mets were found in multiple areas. My original diagnosis was in '96 with a mastectomy and chemo.(at age 40 ) Recurrence in '09 with radiation and then 5 years of arimidex. Then it reared its ugly head again in '16 and I started ibrance and exemestane... after 3 years and new progression tried Ibrance with letrozole .. and after no luck with that I am now on Ibrance with Faslodex. I just keep on going with whatever my onc seems to think is best. I just tease him that he has to keep working as long as I am around-- no retirement for him !!There are lots of treatments and combos.. stay positive.. let yourself have a down day here and there but don't stay there. Enjoy life and all it has to give !!

[Hidden]

Welcome

This is a great place to ask questions and find support. We are all in the same boat so we understand one another.

My mets were found 13 years after initial breast ca.

I found the first few months emotional after diagnosis, but I kept working because I wanted to be as normal as possible.

I’m a year and 3 months in, still working and doing most of the things I love.

You will find your groove, and we are here to help

Clare x