Can anyone taste their cancer

[Kiera49]

I am not on cancer treatment as waiting till next week for new meds, but have horrible taste in mouth and things taste the same

[Hidden]

Hi Kiera, I get an awful taste sometimes but put it down to the statin I take for Cholesterol. Maybe it’s from the Ibrance or Letrozole. It’s only like that occasionally and I crave something sweet when it happens. Of course that could be physiological. Hope this helps.

Best wishes

Cheryl

[Kiera49 in reply to Hidden]

Hi Cheryl that helps a lot, it could be psychological who knows, but could be that I'm worried about having to wait to start new meds, thanks for replying

[seiler]

Are /were you on Ibrance? I've been on it for over 4 years and every day and night round the clock, all foods taste absolutely awful. I called the company and spoke to their pharmacist and she said some people report the same thing and it's an allergy to some ingredient. The taste is not metallic; it's indescribable. Just awful. If I eat chocolate ice cream it's not bad but I'm gaining too much weight.

[Kiera49 in reply to seiler]

I was on Ibrance been off it two weeks, chocolate tastes of nothing, putting me off it, helps with diet. Thanks for your reply

[Arisgram]

I'm on treatment, but yes to a terrible taste in my mouth, especially at night. Not as bad as the pregnancy taste I had, but it's there.

Here's to a successful next treatment and the bad taste taking a hike!!

Andi

[Kiera49 in reply to Arisgram]

Thank you xx

[hdhonda]

Kiera,

This is a new one to me. Hope you find out soon or even better yet it goes away on its own.

Blessings, Hannah

[Mcangel11]

omg i always say there is that chemo smell

[Julie2233]

I’m not taking anything at the moment but while on IV chemo I developed a nasty taste after every infusion. It stopped until I started xeloda and it hasn’t gone. It’s similar to sweet sour milk. Dentist has checked my mouth and can’t find a reason and I don’t have any digestion issues.

[Kiera49 in reply to Julie2233]

It's gone now but due to start xeloda this week xx

[Debkelly]

My husband said I sometimes smelt like a strong chemicals. I smelt it too☹️

[BTS613]

Hi Kiera. I was diagnosed with MBC with mets in lung and bones. Before starting treatment I had a horrible taste in my mouth all the time. It made me so nauseous. I started letrazole in mid May. I can say that the taste is now almost completely gone. I start Ibrance today and xgeva in August. I really think that your taste will go away. Also if it is legal where you are I recommend medical marijuana. My tumor marker numbers in May was 895 and now it is 278! And that is from letrazole and marijuana only. I hope once the other two meds start it will be even better! Good luck to you!

[Kiera49]

Thank you just come off ibrance and letrozole worked for 18 months, so now have to try new meds taste has gone now so that's good