xeloda

[BangorBelle56]

Just wondering how long people manage to stay on this. I know people have problems with their hands and feet . Thanks .

[Birdee]

I have neuropathy in my hands and it is miserable. I have just started 2 medications that are giving me relief. I am 8 months in this journey.

[Cafeole2 in reply to Birdee]

I’ve been on Xeloda 5 months. 2 weeks on 1 week off. My side effects are in my feet and hands. Finger tops are very sensitive. I have to wear rubber gloves for everything. My thumb peeled, now my iphone doesn’t recognize my finger print. You mentioned 2 medications that help. Please share what they are. God bless you, Mary

[Birdee in reply to Cafeole2]

Absolutely. I take 600mg of Gabapentin 3 times a day and 25 mg of Pregabalin 2 times per day. I find it makes a huge difference in my neuropathy pain.

[SusieIM]

Thank you for your question, will be starting on this treatment about next week.

[barbarac76]

I have been on Xeloda since February, 2019.

[BangorBelle56 in reply to barbarac76]

That is reassuring. Thanks 😀

[jstickrod]

I have been on Xeloda since April 2019, so approaching one year. Feet are ok, tips of fingers are very, very dry, but very little other side effects. Good luck!

[MMMP]

I got 3 years on it had to titrate the dose throughout but it worked on keeping my TNBC in check- yes my hands and feet took the brunt of it but with a lot of creams and lotions my hands were good - lost my finger print- wishing you a long time on it as well!!

[BangorBelle56]

Thanks x

[BangorBelle56]

Thanks x

[rubyc1234]

I was on it a year and a half and then switched to Ibrance and letrazole. I never had any hand or feet issues and no mouth sores but plenty of gas and diarrhea. No neuropathy either.

[BangorBelle56]

Thanks x

[Marieleb]

Hi... Just started it as my 4th line of treatment 2.5 weeks ago... I have terrible neck and back pain but suspect it is more because of bones mets that meds...

[BangorBelle56]

Thanks for the reply. poor you and you are so young. NHS is such a lottery. Hope you feel better soon and Xeloda works for you. Sorry can I also ask your dose and if on one week on one week off. Thanks.

[SusieIM]

Good question, it may be very individual. I just started on xeloda, 14 days on, 7 days off.

[BangorBelle56]

Thanks Susie and good luck.