I am going to begin Xeloda in a week. The clinical trial I was in was a complete waste of time. What should I expect as far as side effects? Also my doctor said to get thick athletic socks and good shoes. What have you worn that works? Thanks!
Colleen
I wear Birkenstock’s sandals and the clogs- had my fill of sore feet from the drug anywhere from sore toenails to blisters and dry red cracking - cream my feet twice a day with Cerve healing cream it’s like a vasoline but not greasy- soft socks feel good along with a good soak in epsom salt bath. They get really red if on feet too long- my hands get sore and red on the palms too - some people don’t get the hand foot syndrome maybe you will be lucky!!! I’ve been on it for 3 years!!!
Did you lose your hair?
Hi there, I was started on 4000mg Xeloda a day, just last month. At day 11 of 14 my feet went nuts with pain, swelling, redness so I immediately called my onc. I was advised to finish out the 14 days and hope it clears during my “off” week. Turns out he was right. My feet are looking really strange at day 2 “off” but will soak them right away. I am also inside out nauseous-does this nausea thing go away after a while? I will see the doc again before I start up again as he follows my progress like a hawk. Great doc! He saved me from stage 2B in 1999 @ just 34 years old. When it returned in 2016 as stage 4, I ran back to him and I pray that I will be like you and still writing here 3 years from now. I had good success with Ibrance/Aromisan treatment for 30 months which is longer than the advertisement gives us. I try to stick with the motto that Cancer is going to Live with My Life and not the other way around.
Take Good Care
I'm starting cycle two this week. I couldn't finish cycle one with 4000mg a day. It was dropped to 3000mg a day so I guess we'll see. My feet are sore but so far that's it. I couldn't finish cycle one because I couldn't hold anything down and was dehydrated. I'm hoping the reduced dose is better. I was 38 when I was first diagnosed in 2010. It came back about 2 years ago. I agree with your motto! I still work and love my job. I plan to work as long as possible. It keeps my mind off cancer and on other things. Keep me posted how it's going!
Thank you 💕. Sounds like we are right in line together on this Xeloda trip. I feel if I can get a handle on the nausea I’ll be ok. Chat soon-Becky
Take Zofran and tell your Dr. To lower the dose- it’s a marathon not a sprint- I only take 1500 twice a day - 7 on 7 off- all I can tolerate!! Good luck!! You can do it - it’s a great drug!!!
Hi Colleen, I have been on xeloda for about the last 6 months. I started out with 3 pills in the morning and afternoon. My feel really started to bother me about half way in even though I started on creams in my feet when I first started. I also got a rash on my forearms. My doctor finally drop it to 2 pills at night and it has made a huge difference. I still out creme in my feet at night with socks and aquaphor seems to work the best for me. He also gave me a steroid creme for the rash but didn’t see much helps so I switched to a more natural treatment. Fractionated coconut oil with a few drops of frankincense. It has worked much better. My hands aren’t too bad. I still wear my regular shoes and work out 2-3 times a week. When I am home I either wear flip flops or slippers. Hope that helps.
Kim
My sister is on Xeloda, lost all her hair after the second treatment. No side effects other that losing her hair. Good luck to you....
So weird - my doctor said I wouldn't lose my hair and I haven't. I wonder why she lost hers? Best to your sister.
I don't know, they did tell her that she might not, but she did, after only two treatments. The only other thing she's on is Zometa and she's been on that for over a year.
I guess everyone is different. I am on it indefinitely or until it might not work anymore so glad I have been able to hang on to my hair. Been there done that before.
Same with my sister, she's on it until it stops working. She lost her hair too the first go around. Good luck to you....
Thanks. 😊💕
Kim, I was talking with my sister this morning and I was totally wrong, She took the Xeloda for two cycles but cancer still spread, now she is on Halaven. That's why she lost her hair...When I'm with my sister we do not talk about her cancer and treatments as sometimes she says that unless someone brings it up, she forgets she has it....
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