Any 2 time Chemo warriors?

[shannamilton]

Mets spreading, started chemotherapy again on Tuesday. I found out Monday that my scans show mets in more bone in various parts of my body, and my liver. I had previously only had mets in 2 vertebrae. My oncologist had me scheduled to re insert my port Tuesday, and I had my first weekly round of taxol. I've been fighting for 4 years, so I'm okay. Just pushed and exhausted. I wish I didnt have to deal with this.

My poor kids are 5,8,and 11. I hate they have to have their mom sick. Any advice from people that have had multiple chemo treatments? The worst part, I just dropped like $600 on my hair over this past year because it had finally grown out from chemo 4 years ago!.

[nstonerocks]

Going thru this now. Radiation plus chemo. Couldn’t tolerate much carboplatin. Got several rounds of Taxol. You look great. Keep going. Who knows what good drugs are coming down the pike. We have to hang in there. I’m not going to lie, it’s been rough. I was nauseous all last nite. Living on coca cola and crackers today. Have to drag myself out of bed to radiation. But I/we need to beat this back into submission. Have a wig waiting for me at home. Got my hair cut really short yesterday. Ordered Unicornsnot from Amazon - silver sparkly gel. Going to put it into my short hair. It comes in several colors. You can do this. I’m almost done with this part of treatment. Fingers crossed for you

[hopenowandtomorrow]

Very sorry to hear your news. I am a one time IV chemo and now on Oral Chemo, IBrance. Have you considered Joe Tippens Protocol to do with your traditional treatment? Many have had good results from it. ❤️🙏❤️

[Hidden]

I had chemo in 2004 and Taxol in 2014. First go round made me nauseous. Second go round crushed my energy. Taxol was draining. I wish I’d been forewarned as I thought I’d rebound after each session like I did in 2004. It was much more physically draining for me. It took a solid 5 months before I rebounded. Had I been told how fatiguing taxol is, I would’ve dialed back my activity and just given myself permission to fall into bed earlier each day.

FWIW the Ibrance is much easier to tolerate since MBC diagnosis in 2018. I’m active and engaged. I truly doubt I’d do anything other than chemo that’s palliative ever again. Chemo beats the tar out of me. Lousy quality of life and I question any more world help after the others didn’t

[Hidden]

PS. You can find hats or baseball caps that have hair extensions sticking out so you don’t have to wear a full wig constantly. They’re kind of cute

[lynnhbtb]

First, Shanna, I"m very sorry you're having to go through this again. I'm on my second chemotherapy round as well. My first was nearly 8 years ago when I was diagnosed Stage IV de novo (from the get-go). Been on chemotherapy again for 14 months. I've been using cold caps from Penguin and have kept my hair through taxol, gemzar and taxotere. IF you can swing it you may want to look into them. Expensive, but worth it to me for my mental health. Mets were to my C spine, ribs, pelvic and liver. Now scans can't find the ones on my bones anymore, and some liver mets have decreased, but one questionable spot. I've recently gotten a new term for me "....her cancer is not curable with today's medicine." Go figure.

So, it's doable and I hope you don't have an open-ended treatment. Hang in there.

xo

Best,

Lynn