Side effects Fulvestrant?: Having a two... - SHARE Metastatic ...

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Side effects Fulvestrant?

BangorBelle56 profile image
12 Replies

Having a two month break from chemo and have be put on Fulvstrant on a temporary basis. I have noticed joint and back pain. Have just had total body and CT scan with good results so know it is not new tumours. Just wondering if anyone else has experienced this side effect? Many thanks, Ruth

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BangorBelle56
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12 Replies
Wintervt profile image
Wintervt

Hi Ruth,

I just started Fulvestrant ( I was on Letrozole and Ibrance for 18 months) and have noticed joint and back pain but it is alleviated by ibuprofen.

xo Jade

BangorBelle56 profile image
BangorBelle56 in reply to Wintervt

Thanks Jade. Good luck !

cpidacks profile image
cpidacks

I have been on Fulvestrant since March. I have not had joint and back pain. My side effects vary from month to month. You might notice bruising at the injection sites, pain for a few days at the injection sites, itching for a few days and hardness underneath the skin. Good luck with your monthly shots.

BangorBelle56 profile image
BangorBelle56 in reply to cpidacks

Thanks cp

diamags profile image
diamags

I've been on for 6 years! Joint pain is a normal side effect. If I walk everyday, it goes down to zero. Ibuprofen is a quicker way to relief!

in reply to diamags

Hi diamags! Six years! That's awesome! Is that your first or second line treatment? I am encouraged by long-term effectiveness... :)

diamags profile image
diamags in reply to

First line, pre-Ibrance! Anastrozole and Faslodex have been my friends

mariootsi profile image
mariootsi

I have had some joint pain too. Not bad, just annoying.

Feel better.

BangorBelle56 profile image
BangorBelle56 in reply to mariootsi

Thanks for the reply.

Thatflowerlady profile image
Thatflowerlady

I have some back and joint pain with Faslodex but my body seem to tolerate it much better than the letrozole , the pain / discomfort is manageable. It Seems these medications effect all of us so differently . I recently started doing Physiotherapy and have really found it beneficial .

BangorBelle56 profile image
BangorBelle56 in reply to Thatflowerlady

Thanks

Lordmandy profile image
Lordmandy

Yes! I just had first shot and feel like flu. Body aches and pains and NO energy. I hope it's temporary while adjusting.

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