Update: Went to see the Nurse... - SHARE Metastatic ...

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Update

lilybank profile image
8 Replies

Went to see the Nurse Consultant got to go monthly to pick up tablets right about the 3 month no blood tests just pick up tablets once a month and just blood pressure etc can't give you the tablets for 3 months because of the cost etc here in Uk Nhs.

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lilybank
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Mindysooty profile image
Mindysooty

Hi Lily, I'm in UK and I pick up my Palbociclib (Ibrance) monthly but I do also have blood tests monthly too to make sure my neutrophils are at a safe level for the Onc to prescribe the it. Not sure what you take but I suppose it depends what meds you're on as to whether they deem it necessary to have the bloods.

best wishes

Josie

lilybank profile image
lilybank in reply to Mindysooty

Ibrance and aromisin no bloods from now every 3 months usual protocol

Contact the unit if you have a temp or A & E if it's a weekend I'm in Essex by the way

lilybank profile image
lilybank in reply to lilybank

They did say that after 6 cycles you seem to be stable so they consider this after this time just started cycle 14

Mindysooty profile image
Mindysooty in reply to lilybank

Ah right I see. Mine might go to 3 months then after a while.

Scandia68 profile image
Scandia68 in reply to Mindysooty

I’m the same, monthly pick up of palbociclib and letrozole but always with blood tests.

Hi Lily

I have just started my 5th cycle of Letrozole and Ibrance. My Onc said I would probably go to 2 monthly after my next scan in October.

She said it was to make it easier for us. It’s normally a long wait..... we get bloods done in the morning, then go back for appt, wait to see Dr/nurse, wait, have injections, wait, and wait a bit longer to get tablets.

I must say, the month comes around very quickly for me, and if I can get on with my life hospital free for a couple of months, it will certainly make me feel more normal.

I also asked about Brexit and it’s affect on our treatment. She said the Health Board, and other Boards have made contingency plans, so there will be no problems.

Clare 🙂

Hi Lily,

I don't know what treatment you are on, but I have a blood test every three months, the week prior to my zometa infusion. It does not affect my letrozole or zoladex, so I still get my prescription and injection on time every time.

Sophie

kearnan profile image
kearnan

I'm in US. Every month, I go to cancer center (tomorrow, as a matter of fact). I had a CT scan due on Thursday of this week. I first get my blood work done, then meet with onco (this week about results, but meet with her every time anyway), then the finale is the falsodex injections. Here, I got my meds delivered by the specialty pharmacy. I call them a week before I am going to run out. When I was on Ibrance, it was sent federal express. Interesting the difference in how medical works in different countries. When I started the Ibrance (only 3 cycles and it was stopped, not due to progression though), a nurse from Pfizer, the company that makes Ibrance would call me once a month to ask if I had any side effects, what kind and the severity and would recommend some methods to deal with it but she would always say Talk to your doctor first. I guess they were tracking women who were starting with Ibrance since its a fairly new drug.

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