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Nasal sores

Mindysooty profile image
17 Replies

Hi

I've almost finished my first round of Ibrance - 21 days on/7 days off. I dont think I've done too bad so far but over the last few days I've developed sores inside my nose. I've got ulcers inside my mouth and sore lips - which I was told to expect - but I just wondered if anyone else had experienced anything like this and if there's anything I can use to ease the pain/discomfort. Thanks.

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Mindysooty
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17 Replies
SpongebobMom profile image
SpongebobMom

I use a mouthwash called Peroxyl, helped with mouth sores immensely.

as for the nose, i am trying to not touch my nose (I have a bad habit of being a picker, lol)

MMMP profile image
MMMP in reply toSpongebobMom

Is the mouth wash over the counter or is it a Rx?

Maludagui profile image
Maludagui in reply toMMMP

The name is Colgate Peroxyl is out the counter. At CVS 13$

Maludagui profile image
Maludagui in reply toMaludagui

But I use Biotene

AnnaChurch profile image
AnnaChurch

HI! My onc prescribed a mouthwash(Maybe it was called miracle mouthwash). I used a natural lip moisturizer and drank more water. Hope you feel better soon!

Valisa profile image
Valisa

I have also had the sores in my nose and use a q tip to apply a small amount of polysporin ointment a couple times a day and at bedtime. This cleared them up within a week or so. I hope this helps but I would still mention the nose and mouth sores to your oncologist just to be on the safe side.

Mindysooty profile image
Mindysooty

Thanks for the advice x

Nmartinez15 profile image
Nmartinez15

I am developing crazy cold sore in my mouth since I start taking Ibrance and stop 2 weeks ago by onc recommendation bc my white cell were very low. I never have so much sores in my mouth!!! 😭

Mindysooty profile image
Mindysooty in reply toNmartinez15

Oh no thats not good. Im hoping mine doesnt get any worse because everything else is ok. Good luck and take care. X

Nmartinez15 profile image
Nmartinez15 in reply toMindysooty

Yes, I was having headaches every day too. My onc will reduce my dose next month when we try again. What is your dose?

Mindysooty profile image
Mindysooty

125g x 21 days and 7 days off. I had a few headaches but wasnt sure if that was with the Ibrance or Letrozole. Either way it wasnt too bad for me. Whats your dose and how long you been on it?

Livinthedream profile image
Livinthedream

Yes i have had nasal sores from ibrance. Get on the lowest dosage and they won’t be as bad as they are on a higher dose.

Mindysooty profile image
Mindysooty in reply toLivinthedream

Thanks I'll bear it in mind. X

Julie2233 profile image
Julie2233

When I get run down I get sores inside my nose. I use a small amount of sudocrem (zinc cream for nappy rash) and it really helps. I have no idea if you are supposed to use it in this way, but it works for me.

For mouth ulcers I find rinsing with salt water very soothing.

For cold sores my gp prescribes aciclovir tablets, a high does for active sores and a low maintenance dose to stop them developing.

Mindysooty profile image
Mindysooty in reply toJulie2233

Thanks Julie. Ive got some sudocrem so I'll give that a try. I have been using salt water too. Thanks for the advice. X

Julie2233 profile image
Julie2233 in reply toMindysooty

One other thought, dry skin is a side effect of ibrance and my oncologist recommends 3 litres of water a day. I've been on ibrance for 16 cycles now and I've noticed that if i don't drink enough I get dry skin, lips (which leads to cold sores) and eyes, and sores inside my nose. So keep well hydrated, it might help.

Mindysooty profile image
Mindysooty

Im sure theres something in that. I started off drinking 4 litres of water a day but admit its dwindled down a bit well a lot really. Probably drinking 2 litres now. I feel lowsy this morning - headache, tired, diarrhoea - together with the mouth ulcers and sore nose this is my worst day so far. I think I only had 1.5 litres yesterday so I defo need to up my game on the hydration front dont I. Thanks. Xx

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