Struggling: Good afternoon I was... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,792 members8,415 posts

Struggling

Lilian848 profile image
7 Replies

Good afternoon

I was diagnosed with stage 4 MBC gone to my bones in June of 2018 six months after losing my husband to Stage 4 Lung Cancer. I am taking Ibrance and Femara and had no issues until Nov when I started having numbness and nerve damage in my right foot which also resulted in foot drop. I got a leg brace for my right foot and had surgery on my spine (lamienetomy) which was suppose to fix the numbness and nerve damage. Since the surgery my left foot has developed the same symptoms. Today I am feeling really down because I have lost my independence, really haven’t had time to grieve my husband. To make a long story short has anyone else experience any of the above issues while on Ibrance or femara. Just trying to rule out medications

Written by
Lilian848 profile image
Lilian848
To view profiles and participate in discussions please or .
Read more about...
7 Replies
beachlover65 profile image
beachlover65

Hello. I am so sorry for the loss of your husband, and for your diagnosis. I was on Ibrance and Femara for four months and did not experience what you are. I have neuropathy now in my feet due to Taxol, but I was warned of this side effect. When on Ibrance and Femara, I was only warned of mouth sores, which I did experience. Maybe this foot issue is related to something else entirely - not your cancer. I too had a bout with a tendon problem in August and had to where a cast on my leg for 2 months - this had nothing to do with my cancer and I still don't know what caused it! I hope that you find some time to grieve properly and find some peace in your days.

hdhonda profile image
hdhonda

Lillian, you have been through so much. My heart breaks for you. I am on Ibrance/Letrozol but have not had nerve damage. My feet are numb from diabetes. Lots of hugs to you. Blessings, Hannah

Lilian848 profile image
Lilian848 in reply tohdhonda

Good morning Mary

They did the lamienectomy because the MRI showed that I had a tethered spinal cord dhich they believed was the issue causing the numbness,weakness and drop foot not cancer related at all. But since the surgery nothing has changed with my right foot and now my left foot is affected as well. Just looking for other causes. I am having another MRI on Saturday with a followup with the neurologist.

NPmary profile image
NPmary

I am so sorry for your loss. Grief upon grief!

Was your laminectomy done because of cancer affecting the spine or something else?

I have some neuropathy and pain legs and feet but not as bad as yours. Not from meds but from arthritis and tumor on spine. Also right arm shoulder hand symptoms from cancer.

I hope you get some relief from your symptoms.

mariootsi profile image
mariootsi

So sorry for the loss of your husband. I hope you are able to grieve and gain your strength back in mind and body.

I also lost my husband. It is so difficult to deal with. I hope you have friends and family for support. Reach out to them. Hold them close.

Love,

Marianne

Nananewf54 profile image
Nananewf54

On ibrance and lertroizle .. For the past 8 months now ..feeling more pain in my bones..no mouth sores .. But hair thinning out no energy ..hot flashes like crazy ..stage 4 was what i was told also..also have in my lungs but was told they have stablized . going for more scans in 2 weeks ..bone and and pelvis and organs..

NCDS profile image
NCDS

So very sorry for your loss and suffering. I was on Femera nine years ago and suffered so much bone pain I couldn’t walk. Changed to amatrozole (?). Much better, no side effects.It could be the Femera. Good luck and prayers.

Not what you're looking for?

You may also like...

Low blood count

I was diagnosed with stage 4 April 2017,never had breast cancer before, stage 4 at initial...

Flu or meds

I am on Ibrance, Femara and Xgeva injection 4 months, stage IV. Just had PET scan and got good...
Presence1 profile image

Bone Pain

My doctor just took me off of Ibrance, after 4 years, because my spine and neck are showing signs...
sancarlos profile image

Breast surgery for de novo Stage 4

Hi, I was diagnosed with de novo stage 4 mbc with extensive bone mets in Feb 2021. Prior to...

New Member

Hi to all my fellow Warriors. I’m 71 and I’ve been treated for Stage 4 Metastatic BC for 11 months....
Shafight profile image

Moderation team

See all
Jslanovich profile image
JslanovichAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.