Xeloda side effects

[KarenHale]

I have been on xeloda three rounds now I’ve heard of hands and feet cracking but my hands are not cracking they literally feel like they’re on fire has anybody else experienced this? And what have you done for it?

[MMMP]

Yes -on fire is the appropriate word- I would wake up in the middle of the night- ice packs or run them under cool water- I would put Cerve healing ointment on all night long- I just went off it - was on for 3 years- a great drug if you can handle the side effects- my feet would get red and hot as well. Foot soaks with epsom salt and lots of creams- over the years I bet I tried them all-

[KarenHale in reply to MMMP]

Thank you so much for the reply. I would absolutely love it if this medicine takes me three years you are very blessed. what are you on now?

[MMMP in reply to KarenHale]

I just started the letrozol and ibrance- was Triple Negative so did the Xeloda but with some weak estrogen-so now trying this.

[KarenHale in reply to MMMP]

Well good luck with that I was on letrozole and Ibrance for approximately a year and a half and it worked great hardly no side effects at all maybe a little tired. Let me know how it’s going🙏

[MMMP in reply to KarenHale]

Will do- 😘

[Sweeten_1]

I have been on xeloda for a year. Take B6 for skin it helps onc recommended. Use lots of lotion for hands and feet. Sometimes feet burn and feel like walking on marbles. Onc reduced to 3000 mg daily one week on one week off. Scans every 3 mo. Last 9 mo have been ned. Dx 2012. BC went to peritoneum and omentum.

[KarenHale in reply to Sweeten_1]

That’s exactly where my cancer spread to the peritoneum and the bones. what other medicine have you been on? Have you ever gotten bowl obstructions?

[Sweeten_1 in reply to KarenHale]

At dx 12/2012 started letrozole for 2 and half yrs then exemestene and afinator clinical trial for maybe months but stopped due to making me sick and in bed alot then ibrance and faslodex 2 yrs now xeloda for a yr. Scans every 3 mo and past 3 scan ned. Also zometa since dx. I have to be careful what I eat due to getting constipated which causes terrible lower pain. Due for pet scan and bone in May. Last pet was 12/12 which showed alot of mets but went for 2nd opinion and gave me more hope. So from now on I stay with only places that are up on mbc.

[KarenHale in reply to Sweeten_1]

You’re pretty blessed you’ve been on each medicine for a good period of time. Good luck going forward there’s a lot of new medicine out there. I’m trying to get on clinical trials now. God is good 💕

[Sweeten_1 in reply to KarenHale]

God is good and gives strength at dark times.

[Cshipley123]

I am half way through my 3rd cycle of Xeloda. I was on 2000mg twice a day. The doctor lowered it to 1500 twice a day and it's been better. I would like to do the week on week off option. I have a scan the second week of April to see if the medicine has been effective. My hands and feet are on fire too! It's worse the second week of the cycle and gets better my week off. I use Udderly Smooth lotion and Bag Balm lotion. I like the Udderly Smooth better as it cools my hands and feet. However the Bag Balm is thicker. I wish you the best and that this medicine works for all of us on it!

[Kimr2081]

Hi Karen. I’ve been on xeloda for about 6 months. My hands have not gotten to bad and never felt on fire. My feet were bad for awhile. I described it like I had sunburned the bottom of my feet and then tried to walk on them. My one lowered the dosage and it helped a lot. I use aquaphor on my feet at night and when not working I try to just wear flip flops. Overall for me it hasn’t been painful just more annoying. Hope it gets better. My tumors have been stable on the drug and I will have my next scan in May. Hoping for the best.

Kim

[NCDS]

Yes, little cracking on fingers but more of a burning feeling . 4 th round started.

[Oliveoyle]

I am just starting round 3 tomorrow. Determined to find a solution as I could barely walk at the end of round 2. I have no cracking yet but pain and redness/heat! My crazy solution was mixing manuka honey and coco butter in my hands and rubbing into my feet in the morning and putting socks on right away. It helped that day but the next day I started my week off. I am going to try it every day starting tomorrow. Very sticky on the hands but at the end of the day my hands and feet were better than previous days.