Tired and dizzy: Hi ladies The last few... - SHARE Metastatic ...

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Tired and dizzy

Barbteeth profile image
40 Replies

Hi ladies

The last few days I e been abnormally tired..yesterday had to lie down and slept for 2 hours..today I forced myself to ride my horse..just a steady plod but when I got off I was weak and dizzy..my friend had to untack him and sort him out..thought I was going to faint and my legs were weak

My haemaglobin Was very low at last blood tests so I’m assuming it’s that..having an iron infusion tomorrow..I’ve never fainted in my life so hope this will help..it was a horrible feeling

Have any of you had an iron infusion?.. do they work quickly?

Barb xx

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Barbteeth
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40 Replies
Godbeforme profile image
Godbeforme

never had one, hope and pray it works quick to give your strength back. it almost sounds like your blood sugar bottomed out, speaking as a diabetic, not saying you are. feel better soon! <3 xo

Barbteeth profile image
Barbteeth in reply to Godbeforme

Thank you

I’m not diabetic as far as I’m aware...my vision went blurry almost like the effects when I have a migraine..I had eaten breakfast etc...horrible feeling though

Maybe I’ll be bouncing off the walls next week after my iron boost!!!

My husband does most of the cooking and he’s a vegetarian but eats fish..I don’t like fish so I think I’ll have to incorporate some meat into my diet..I know vegetables and pulsed etc have iron but it’s not so easily absorbed

Barb xx

Godbeforme profile image
Godbeforme in reply to Barbteeth

I love the Glory brand of collard greens they sell at walmart, already seasoned too! lots of iron in collard greens and spinach. For protein, I'm eating baked chicken breasts and I found that cottage cheese has quite a bit also, as well as calcium. I make a sauce for the chicken with butter and parmesan cheese sprinkled lightly on it, and salt of course, yummy!

Barbteeth profile image
Barbteeth in reply to Godbeforme

I’m in uk do don’t have that brand of greens..they sound lovely..and the chicken..yummy!

Interesting about cottage cheese with iron..the problem with that is the calcium will inhibit the absorption of the iron which is a shame,,I’ve been reading up on iron..things that hinder absorption are calcium..tea coffee anything dairy..but orange juice or any vitamin c increases uptake..I guess some meat with a glass of orange juice is the best combo

Barb xx

Godbeforme profile image
Godbeforme in reply to Barbteeth

I'm sorry, it's not iron in cottage cheese, it's protein ... 12 grams per 1/2 cup! I'm trying to play catch-up on all my minerals because I have not been eating right for a very long time. I was told at 40 that I had the bones of a 25 year old, so being big and very dense boned, I assumed I was good for life DUH! never worried about getting my calcium or protein. now taking "move easy" for the boron content as again, I read that boron is required as well to build bone. Been on letrozole 2 mos. and when I went to ortho, quite a bit of new bone had been built around the break, so that was really good to hear. okay, enough rabbiting, I can hear my hubby now! <3 God bless you and heal us all, amen!

Barbteeth profile image
Barbteeth in reply to Godbeforme

Interesting about boron..apparently it’s in lots of foods and we don’t require much which is good

Barb xx

The-artist profile image
The-artist in reply to Barbteeth

I’m hypoglycemic and get very blurry eyed it’s a horrible feeling so maybe that’s it. Sometimes even when I eat. Try piece of fruit.

Barbteeth profile image
Barbteeth in reply to The-artist

It’s the worst feeling ever.. I was quite scared as I’ve never experienced it

Barb xx

nstonerocks profile image
nstonerocks

I have not had infusions, but boy was I exhausted last weekend and Monday. I could barely stay awake. Slept a lot. The kind of fatigue where it itakes too much energy to breathe. Thank God it passed and tho I am not doing cartwheels, I feel enough energy to get thru the day. Hope this passes soon! ❤️

Barbteeth profile image
Barbteeth in reply to nstonerocks

Hi there

I’ve never felt like this ever and it was quite frightening..I’m so glad you’re feeling much better.. I’m assuming it’s the low haemaglobin...does your red cell count drop sometimes?

Barb xx

nstonerocks profile image
nstonerocks in reply to Barbteeth

Yes. And my white cells, especially. I think Ibrance can suck the life out of you. I keep the goal in mind. I do feel better and you will too.

Barbteeth profile image
Barbteeth in reply to nstonerocks

I know...as you say the Ibrance is most likely the culprit

Barb XX

Godbeforme profile image
Godbeforme in reply to Barbteeth

and thank you for the info on calcium and iron uptake; I had no idea! :)

The-artist profile image
The-artist in reply to Barbteeth

I’m on Ibrance and my platelets constantly drop very low. So doc put me on 75mg and they did better. Thank you God.

Barbteeth profile image
Barbteeth in reply to The-artist

I will ask about going on 75 mg..it works just the same from what I’ve read on here..why suffer from these awful side effects

Good luck

Barb xx

Hi Barb,

I have never had an iron infusion before, so can't comment on that. But I have fainted before. It was normally because I became anaemic during my periods, as I used to lose so much blood. I would mention what happened to the doctors tomorrow. It sounds like it could be your low haemoglobin, as you say it was low last time you had it checked, but it is best to be checked over in case there may be another underlying cause such as diabetes.

Take care and I hope you are feeling better soon.

Sophie x

Barbteeth profile image
Barbteeth in reply to

Thanks Sophie

You watch..the new Barb will emerge lol

Xx

in reply to Barbteeth

You're welcome, Barb. Hopefully the iron infusions will give you an energy boost.

Sophie x

Barbteeth profile image
Barbteeth

Hi Sandra

Thanks for that

I tried iron tablets but threw up!!.. I do take a liquid supplement called Spatone but it’s not strong enough obviously to defeat the Ibrance effects

I’ll take a book with me!!

Barb xx

Barbteeth profile image
Barbteeth

Thanks for that Sandra

I’ll try that supplement..it says it’s easy on the stomach...I usually have a cast iron stomach but those bog standard tablets were vile ..they were binned immediately!

Barb xx

Francesca10 profile image
Francesca10

Definitely the low hemoglobin causing those symptoms. The iron transfusions will help a lot. Ibrance’s side effects are known to affect all blood counts. I hope you feel better really soon/-try to eat red meats also and just rest until you go for transfusions. Hugs 💕🙏🏻Frances

Barbteeth profile image
Barbteeth in reply to Francesca10

Oh thank you Francesca..I knew there was something wrong..for once I’m looking forward to being ‘needled’

All the best

Barb xx

SusieIM profile image
SusieIM

Barb sorry to hear that you feel very tired, weak. I tired easily, once in a while I'll get super tired, have to just rest. I've not had a iron infusion. Take care

Lovemylakie profile image
Lovemylakie

I am sorry you didn't feel well. I have not had an iron infusion before. If you eat non heme veggies you have to eat citrus along with them for absorbtion. Last week I had the shakes, light headed and a we bit nauseous, not sure why, so I ate some protein and felt better. I too, eat mainly vegetarian but will eat meat occasionally.

Best to you and hope your feeling better so you can ride.

Robin🌷

LeeannW710 profile image
LeeannW710

Hi Barbteeth!

How are you feeling today? How did the transfusion go? Sending you a ton of positve energy and prayers! Xoxo

Barbteeth profile image
Barbteeth in reply to LeeannW710

Thanks Leanne

I was stabbed 3 times to get a needle in but ok apart from that!!.. it was just boring sitting there..I always take a book though

Thanks

Barb xx

LeeannW710 profile image
LeeannW710 in reply to Barbteeth

Omg must bot have been a good day for needles. I got stabbed 5 times myself! Smdh!! Had zometa today. Have got to drink more water!! Hope you are feeling better! Xoxo

mariootsi profile image
mariootsi

I have never had that infusion but I hope it works for you. Any blood issues will definitely make you tired and weak for sure. Feel better!

Love,

Marianne

I have had numerous blood transfusions. My rbc count always seems low. At one point the suggestion was only one bag. However the last couple times I was given 2 bags. The process is long (2 hours for a bag). No pain though and you will definitely get some energy back.

Semple profile image
Semple

Hope you are feeling better today and iron infusion working. Take it easy, rest and as I have been told many times, listen to your body.

Barbteeth profile image
Barbteeth in reply to Semple

Apparently it takes a few days to start showing an effect

Hope it helps

Barb xx

Francesca10 profile image
Francesca10

It will. Be patient and do not push yourself right now. Be gentle to you and give it time. 🙏🏻🙏🏻🙏🏻💕💕you are like new soon.

Frances

Barbteeth profile image
Barbteeth in reply to Francesca10

Thanks Francesca

Barb xx

LeeannW710 profile image
LeeannW710

Hi Sandra,

I see how wonderful you all are and I am happy I stumbled upon this group! Look forward to communicating with you more as well. Xoxo

I have been having dizzy spells since I started Ibrance and they are getting progressively worse. My knees go weak,everything spins and goes black. My BP drops about 10 points when I stand up but nobody seems to know if that is the cause. I can’t do much as it hits without warning.

Barbteeth profile image
Barbteeth in reply to

That happened to me on Sunday..I think as you do that it’s a drop in blood pressure..it’s scary

I was going to go for a walk yesterday but it’s put me off as I’m worried about passing out..daren’t ride my horse at the moment..in too much pain anyway..fed up

Barb xx

in reply to Barbteeth

I thought with spring I would feel better but I’m like you. Fed up with feeling bad and being tired. Has your doctor not prescribed anything for your pain? You shouldn’t be suffering.

lynnhbtb profile image
lynnhbtb

Sorry about your experience. I've had low red blood cell and anemia. I've also had iron infusion. I also get Aranesp, a red blood cell booster (it's a shot), when my RBC falls below 10. I didn't feel a big difference last year with the iron, but I do get good results with the Aranesp. I also eat a lot of kale, spinach and occasionally take iron supplements, the Solgar brand doesn't constipate. Hope that helps. :-)

lynnhbtb profile image
lynnhbtb

PS -- I also get a little light-headed after workouts and was told with my chemotherapy regimen to hydrate, hydrate, hydrate -- although I drink 1/2 my weight in water ozs. daily.

Godbeforme profile image
Godbeforme

a bit off the subject, but have you heard anything about molecular hydrogen water H2, supposedly being good for EVERY condition known to woman? They speak of it as though the fountain of youth has finally been discovered! You can make it yourself, so no money to be made from the youtube DIY video I watched. Let me know what you think, I am always falling for this stuff! grrrrrrrrrrrr Here's the video if interested. youtube.com/watch?v=mJ1DeiD...

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