Like Barteeth, I've had my scan results and like her it's good news. My scan was due in January and I finally had it last week. I was told that they probably wouldn't get the results for my appointment with the oncologist yesterday, but they did. Stable and no progression are wonderful words.
I had a cold back in November and I'm still coughing. I was so worried that it had gone from my bones to my lungs but the lungs are clear. It's such a relief.
As I was driving home this evening there was an article on the news that scientists have found that by examing the molecular structure of the original breast cancer tumour they can determine how the cancer will behave in the future and taylor treatment accordingly. I think this is amazing. It's not available yet but it's a another step in getting on top of this disease. Every day there seems to be advances in our understanding.
This time last year I was waiting for the results of tests to see it the cancer had metastasised, it feels like a life time ago. I had already seen an MRI scan so really knew it had and I didn't think I'd see the year out! How wrong I was!
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Julie2233
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That is the best news to receive. I know there is no cure right now. But to hear it is not spreading is the best.
Won't have my next pet scan until after chemo is finished. I will start again April 18th after my broken ankle heals. But sure hoping to hear no progression.
It's been a bit of a shock going back into the NHS. I finally managed to get a phone number for the oncologist's secretary and she was very helpful. Appears the oncologist forgot to request the scan, the paperwork then wasn't processed. Then the waiting list was 8 weeks long and I was at the bottom of it. She managed to get me an appointment for a scan at another hospital because she knew I was worried.
So relieved that it was all clear that's the trouble with worry, once the seed is planted, it grows like a weed.
That's awesome news. I think stable is a victory!! I think we all fear the worst when something is bothering us. My back has been killing me for the last several months and of course I go down the rabbit hole. I started with an Xray that showed degeneration in some disks and some arthritis which was actually a relief. I will have scans in another month or two so hope it confirms that there is nothing there.
Kimr2081, you should go on (Barlean's is a good brand ) flaxseed oil and cottage cheese as per the Budwig diet. It is so good for the bones and heart and also arthritis. I've been on it now for 4.5 years for breast cancer. Tumeric and CBD oil help with pain too besides all this being good for the cancer fight.
Thanks. I do take tumeric and use CBD oil for anxiety. Do you take it everyday? I have never heard of the Budwig diet. I try and stay away from dairy but if its helpful I might have to try it.
Your comment on the molecular structure was interesting. I had Molecular Diagnostics on my original tumor to determine if there were any variants and to help in choosing drug for targeted treatment. It is new and is available at Massachusetts General Hospital in Boston. I have been on Ibrance and Letrozole since April of last year and doing well. Have Mets to left underarm lymph node and chest hilar lymph node and lung. When diagnosed in January 2018 I thought I was a goner ...by the third hospital and three different treatment plans, I felt most comfortable with MGH. Now I feel like I have a chance to live with this disease and have hope for a future. I’m happy to hear you are stable with no progression...the meds are working! ❤️
Thanks. I had read that it was done in the states but it isn't done here in the uk as far as I know.
They have found 11 different variations of breast cancer each with a different disease path.
My tumour was only tested for oestrogen, when I asked about progesterone I was told that that was only done if it wasn't oestrogen positive because of cost
I felt exactly the same when I was first diagnosed but reading the posts on this site have made me realise that it is very possible to live with this condition. 😊 ❤️
I've never had that facility. Always have to wait for the tests to be interpreted. When I had private health cover this was days, now it's the NHS it tends to be weeks. It is so hard waiting for results, receiving them the same day would prevent a lot of grey hair
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