MBC, ibrance, femara any supplements? - SHARE Metastatic ...

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MBC, ibrance, femara any supplements?

Sheung profile image
14 Replies

Research said flaxseed oil can help breast cancer e.g. reduce the proliferation rate of cancer cell. I just started a few days ago. One spoon a day can do. Walnuts seems to be good to us too. Biotin can help nail and hair growth...etc Any experience to share?

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Sheung profile image
Sheung
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Joan37 profile image
Joan37

I've heard that whether supplements can reduce the proliferation rate of cancer is controversial. And who knows whether some supplements help cancer grow! And what about wine? I love my glass a day, but supposedly it increases our risk of getting breast cancer.

With all the controversy it's hard to know what to do, and the fact that the FDA stopped regulating supplants in the mid 90s make me wonder sometimes whether the dosage is correct, what the label says is actually in the supplement, and that the supplements were manufactured in a clean environment. Some studies have shown that ingredients and dosage are regularly not correct.

I just do the best I can with my daily 600 mg of calcium + 400 iu of vitamin D3, and 200 mg of CoQ10, by taking supplements that have only the USP logo (which just changed recently. Now it's bright orange.).

Supplements with the USP logo are supposed to ensure that the manufacturer is following guidelines to ensure accuracy of ingredients and dosage, as well as clean manufacturing.

The USP label is found on Nature's Miracle supplements, but, importantly, NOT on the label of every supplement and sometimes NOT even on every label of supplements that I buy regularly. So, I have to watch for that.

Someone told me that Kirkland brand, which can be purchased online if not available locally, also has the USP label.

USP is an acronym for United States Pharmacopeia but it's a nonprofit and not a government agency.

usp.org

Besides supplements, I regularly sprinkle ground flax seeds and chia seeds in my food and use curcumin and curry spices. Every morning I sprinkle cinnamon is my coffee before I brew it. I've been doing that for years.

ack2049 profile image
ack2049 in reply toJoan37

I read CoQ 10 Weill increase proliferation when I researched supplements

Joan37 profile image
Joan37 in reply toack2049

Do you remember where you read that? My oncologist didn't say much of anything when I mentioned starting to take it. He said only that it's not as popular as it once was. I'm going to ask him at my next visit next week. My mom took it for 30 years.

Joan37 profile image
Joan37 in reply toack2049

I just looked it up on a Memorial Sloan Ketteing's botanical web pages. Supposedly it's an anti-oxidant, and shouldn't be taken during chemotherapy and radiation. I'm taking only Herceptin, which is not the same as chemo drugs. It's a targeted drug. But I'm going to ask my oncologist anyway. Thanks for mentioning it.

ack2049 profile image
ack2049 in reply toJoan37

I think I did best when I tried to reduce my caloric intake and decrease carbs/sugar as much as possible ( I am a bakery bread girl - love good bread) - all the things you mention have good research to support their use -keep it up!

Joan37 profile image
Joan37 in reply toack2049

. . . I'm an ice-cream girl and love dessert. I try not to bring it home unless we're having company.

kcc9993 profile image
kcc9993 in reply toJoan37

USP does ensure certain standards are met, consumerlab.com also provides tests. It can be very expensive to get the USP seal. If you have questions about the purity of the supplement, contact the manufacturer.

Also, look for a water and fat-soluble form of CoQ10 for better absorption.

Joan37 profile image
Joan37 in reply tokcc9993

kcc9993, thanks for the info!

kcc9993 profile image
kcc9993 in reply toJoan37

You're welcome!

ack2049 profile image
ack2049

Ask an integrative or holistic oncologist if they have one in your dept - sad to say most oncologists are not integrative

RLN-overcomer profile image
RLN-overcomer in reply toack2049

Greetings: sisters Sheung and ack2049 The majority of people trust there doctors, and won't do the research on natural supplements found through out the world that are from Gods green earth. When I research natural modalities, and God gives me the wisdom to add these supplements into my daily diet, I thank God for that ability. I am here with NED= No Evidence of Disease almost 9 years after my oncologist said I wouldn't live to see 2009, and that statement was made to me three times in September/October 2007. I now take 28 customized supplements daily, 14 in the morning, and 14 at night with a healthy diet of food. Just like your medical doctors prescribe medical drugs, they have to know what drugs and how much to give each patient, the same is true for natural supplements, and holistic modalities. You have to know what will biologically work for your particular blood/body type. The natural supplements I am taking is custom for me, you may need a different amount/dosage or an entirely different supplement. Read a book that explains Blood types/body types diet. We have the World Wide Web of information available to us. You do have to know how to pick and choose from the unaccredited/uncertified sites/people, and the certified/accredited sites information. Again every supplement may not work for everybody. Put your trust in God to guide you on your searches/journey Amen .

ack2049 profile image
ack2049 in reply toRLN-overcomer

Dear RLN- Overcomer - the amount of info/conflicting info and false information is overwhelming. What book do you recommend. You are obviously doing something right to be NED after 9 years -any guidance on where to start would be helpful -

blms profile image
blms in reply toack2049

That part of country are you in?

RLN-overcomer profile image
RLN-overcomer

Greetings: Sister ack2049 I do believe God has guided me to certain people (angels) in my life who I have learned so much from. I eat/live by a book called "Blood-type/Body-type diet, by author Joseph Christiano. I don't buy the expensive products the author sells. I do research and, purchase economically comparative products on line.The person who told me to read this book, I met rollerskating and, I was shocked when he looked at my body type and said your blood-type O right. Okay the majority blood type in the world is blood-type O. As he explained things that my body was experiencing, The health issues blood-type O's are susceptible to, I felt he was a doctor reading what was in my medical chart, and some things that wasn't in my medical dossier. After making some small adjustments to my diet and adding necessary supplements/herbs. I no longer needed to take a prescribed anti- inflammatory befor and after rollerskating for arthritis which was brought on by aggressive chemo. I no longer have acid reflux. My fat to muscle ratio allows me to be able to wear a two piece bathing suit with no cover up. I am 5'7' 131-134 lbs, and I am in my late 50's. i am incorporating more good fats ,avocado stone ground corn chips, and coconut oil in my diet to keep my weight from dropping too low. I don't want to look like a 10 year old skinny boy, I still want to keep some feminine curves. I have friends who are blood type AB, and they have for the most part have to eat the complete opposite of my blood type O diet. If you don't know your blood type, find it out and, if you read the book, your eyes will be opened. God and, you are your best health and wellness advocates. May God continue to bless you and your loved ones as we navigate this life journey. Amen, Amen, and yesssssssss Amen

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