My Journey - Breast Cancer: So far - I... - SHARE Breast Canc...

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My Journey - Breast Cancer

lovemydad profile image
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So far - I'm Lucky.

On March 8th - my husband found a lump on my right breast. He was so sweet - Honey - when was your last Mamo. July 2023 - Why. And then he showed me what he felt. After a sleepless night - right to the Gyno - no worries about apts. I needed to see them. They got me a Mamo apt on the 12th with a biopsy on the 17th and the diagnosis of Cancer on March 22nd.

I made the decision to have a double mastectomy - ( May 19th 2023) as I have a stong history of both breast cancer and prostate ( hormone related ) cancers in my family. I also have had 4 malignant melanomas - all in situ. I will follow up with DIEP reconstruction ( Dec 13th ).

Why am I lucky - My cancer was found very early. It is a Stage 1c,n0n0 - small with no spread. It is also very slow growing with a Ki67 of 9%. It is hormone positive ER95% and PR 90-95%. My OncoScore is a 7%. I don't need chemo or radiation. Both my breast surgeon and my reconstruction surgeon have been fantastic. I have their personal cell phones - and they are very responsive.

I had physical therapy prior to my mastectomy ( 6+ hours with both surgeons ) to help with strength afterwards - and of course I am still in physical therapy now. I am 7 weeks post surgery and have full range of motion, There is some pain with the expanders - but that can't be helped. I will start on the strength on my lower half to prepare for the DIEP

My oncologist is also very good - not as open yet! I just started letrozole - and I am guessing its a 5 to 10 year sentence.

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lovemydad
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5 Replies
suryakaizen profile image
suryakaizen

God bless you lovemydad and keep you healthy! You have a great and positive attitude to life and your husband is supportive. What more? Sending you good energies, Lakshmi

Nicu18 profile image
Nicu18 in reply to suryakaizen

God bless you and your husband

Warrio profile image
Warrio

I'm sorry you are on this road. This all sounds very good congrats!!!!!!

jolo777 profile image
jolo777

I have been on Letrozole about 1 year. some hot flashes mostly at night, My biggest problem is bone pain mostly in lower back and hips. I am in physical now for 6 sessions and it is helping.

lovemydad profile image
lovemydad in reply to jolo777

Thanks for your feedback and the therapy recommendations. So far - no issues. I am in Physical therapy for the Mastectomy and now have a script to prepare for the DIEP reconstruction. That will be ongoing for the next year - and I will continue it when its complete. It is a journey - I am sorry everyone here has to be on it. We need positivity - and together we can find it.

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