My cancer has come back in my chest bone!

[Curbs]

Hi, it’s 8 years since I has HER2 grade 3 breast cancer and chemo and a mastectomy on my left side and on a Tuesday my breast consultant told me I have secondary breast cancer in my breast bone. It hasn’t spread anywhere else yet and I am due to have radiotherapy but my bone consultant is on holiday for two weeks so I haven’t a clue what to expect or my prognosis.

Has anyone experienced the same? X

[Rhwright12]

Hi Curbs! Bone mets with Her2+ isn’t too bad...just completed year 4 in July...Been on Herceptin/Perjeta combo since then...If they go this route with u as I’m sure they probably will...There’s a new shot out called PHESGO...It combines both drugs in a a 5 minute shot. I’ve been doing about 3 hours in the infusion room every 3 weeks for 4 years. So I’m really excited about this. Hoping to start by Christmas...But if I was u I’d ask for it out of the gate and skip the whole port thing for now...😀 U can XGeva for the bone mets which is also a shot instead of the 20 minute IV for Zometa...

[Curbs in reply to Rhwright12]

Thank you this gives me hope I was scared they were going to tell me I had 3 months to live 😢

[Rhwright12 in reply to Curbs]

I was extensive 4 years ago...14 in bones and 2 right side and 1 left. Was told 12-24 months depending on how I respond. Flash forward 3 months ago...newbie in the infusion room says her doc told her 10-15 years with the same diagnosis. And that’s barring any new treatments coming up in the mean time...😀

[Dimsdale18 Partner]

A great resource is the SHARE Cancer Support breast cancer helpline. All of the volunteers are breast cancer survivors and can offer support because they have been where you are now. In addition to the Helpline, if you want specific information on your type of cancer, we have a peer matching service which allows us to match you with someone who has a very similar diagnosis and/ or treatment. You can reach out 7 days a week from 9:30 am to 9:00 pm. The number is" 844 ASK-SHARE or 844-275-7427. Our website has many accurate and updated information, support group contact information and educational resources.

sharecancersupport.org. You are not alone with SHARE.