Update/ Captain's Log - Many: I've started to take my Infusion treatments via arm veins (seeing how the Port and PICC line are out of me and I don't want the risk of anymore infections), and at first I was very nervous I'd become a human pin cushion, but I've had now 2 sessions and all has been going well. The first nurse didn't get a vein on the first try, but the second time was the charm. And yesterday another nurse helped the process along by applying a warm blanket to my arm and had me dangle the arm so gravity could help the blood flow. Veins seems to be good around my hand, but of course that is usually the spot that hurts the most, but as long as a vein is found on the first try - I'm not gonna complain.
I have about another 4 sessions to go (done every 3 weeks), so I asked my PA what will be the next steps after I am finished with all my infusion treatments, and she had stated that I would just have follow-up appointments every 6 months - where then blood test will be drawn and a physical exam is done. Does that sound about right? It seems like a long stretch of time to not have any follow-up visits, allot can happen in 6 months. And blood test and physical exams - how much really can be seen from those tests? By the time something shows about on those tests, couldn't recurrence be at an advance stage? Is there any other tests I should be asking for or having?
I've also noticed that I am developing some cording on the side where the tumors were and the sentinel node was removed (it's been about 4 months since my surgery in March). I have seen a physical therapist for massage and exercises to do at home, so hoping the tightness and pulling sensation will subside. I really only feel it when I overextend my arm. If anyone also developed cording, let me know what you recommend will help.
Best to all.