Living with restless legs .

Me my restless legs and I .

When all I could do was cry.

The frustration and the pain ,

The thought of was i going insane.

Me my restless legs and I

I would sit there alone and think of death

Yes, what would it be like to take my last breath .

Just as I lay down to rest the pain .

My restless legs kick off again.

Me my restless legs and I

I sit and I hope and I pray that one day

I can sit and watch my son in his school play

Without my restless legs ruining the day.

Alas it was not ment to be ,

My restless legs saw to that for me.

Me my restless legs and I

With no sleep i lost my job today

My restless legs are here to stay .

So in the madness of the deep dark night

I decide not to give up without a fight

My restless legs might rule my life

But I'm still a mother a lover and wife.

Me my restless legs and I .

[Hidden]

Well said, and we can all relate to those words. And we are all fighters and will go on fighting, hoping our futures will become better when dealing with this condition.

[peterk]

Very touching Zennadream and I am sure that we can all relate to it. Yes RLS ruins a lot of things but we are all fighters. We might give in at times but we come back fighting. Are you able to explain what happened with the job. I couldn't go on with mine due to RLS but my employer ill health retired me though I had worked for them for 26 years.

[Hidden]

Hi thank you for your lovely feedback .

I worked for no more then 6 months in any job . I've had over a hundred jobs in my life time I'm 50 years old . Some I only kept for a month . I did manage to keep a job working nights for a year and a month . I have very bad restless legs every single day or night I should say. I I get it in my arms as bad as my legs . I have walked my floor all night long before and fallen asleep walking . I've had a few accidents too being so tired . I get really bad tempered well I use to . so I could not work because I was too sleepy and a danger to myself and others . When I did make it in to work I would be so bad tempered I would get sacked . In the end I started working for myself .that was the best thing to happen to me because then it did not matter if I was up walking all night long so then the bad temper stopped and my life became better . But , big but it has got a lot worse for me as I've grown older . I also have copd and I need to sleep with copd or the next day I can't breath . I ended my employment had to due to copd . So my restless legs and arms have taken over my life again . It's hell on earth it really is . I take magnesium and hawthorn that seems to help my arms , I take 180 mgs of oxycodone ,for two lung operations I had. that's 3and half times stronger then morphin and it doesn't help my legs . I've beaten them up in the past. iv cut them With a knife lol how dumb was I . That really hurt I would not recommend that to anyone . It doesn't work .

[eileen49]

what meds are you actually taking for RLS Zennadream ?

[Hidden in reply to eileen49]

I'm not taking any from a GP , just magnisum and hawthorn , they don't work not for me anyway .

[baccib]

My heart goes out to all of us. It is a life long issue we will have to deal with. I am a point with mine if I do everything Im supposed to in my regime. I am okay. Stay away from gluton, salt, sugar, take my hot spa bath before going to bed, wear my neuopa patch faihtfully and stay in bed until noon. Yes I lost my career but I am so blessed that I have other ways to support myself. OH YES, I forgot about my monthy B12 shots and my theraputic dose of iron and ascorbic acid. Important of this wellness cocktail is to stay away from people and situations that cause me stress and strife. Easy it is not but it is my choice

[Hidden]

Hi Zennadream, What a life!! I want to tell you that I have RLS since I was 12 years old and I'm now 65!! RLS is in my legs and in my arms and sometime in my face, it's hell. Have tried several medicins and it worked of and on, now i'm since a couple of weeks on SIFROL, I take 2 tablets at 07.00 p.m. and they work for 24 hours and I can sleep again, sit on a chair and I was to the cinema without RLS. It's heaven I can tell you that. I wish you the same! I live in The Netherlands and I'm a woman.

[lass]

that was very true well wrote keep on going ,one day you will be able to see your son in his play best wishes lass

[nightdancer]

Great poem! I have about 200 RLS poems that will make it into a book soon. Another thing that is taking up my time. If anyone wants to contribute, let me know, and you shall get your due recognition.

[Hidden in reply to nightdancer]

Oh that's great for you , I must of written the same amount .

Mine are all ready in print . Iv been in media for many years.

I'm very lucky to have written before for top magazines so I put mine

Out there that way then into my own book .i started a company

In media as it was the only way I could work lucky for me , I met the right people .

I use to do advertising too but now I just write when i can .if you need any tips on

Publishing just ask . I think there should be more people doing poems there's just not enough out there .

[dojen]

Like most of us I have lived with RLS since a child when of course it wasn't even heard of. Fortunately I have a sympathetic GP who learnt about this 'condition' from ME. She did some homework on the paper I provided for her but of course hasn't the time to catch up with all treatments available. I have tried every homeopathic remedy I have heard of and tried two of the prescribed drugs Pramipexole and Advile (not sure about the spelling of those, sorry) Anyway they just made me so ill I couldn't function or eat. However I did find they worked well. If you can take them I would advise you to speak to your G.P. I am now on Clonazipam which of course is addictive and I have to increase the dose about every nine or ten months. I now take 6mgs a night. I am 72 and don't care if I have to increase them to 20mgs a night. For the past five years my life has been worth living. If I had to go back to how I was I would be suicidal. I feel for you all

[maqex]

Hi there,

I suffered RLS for the past 11 or 12 years. I had Chronic Renal Failure and I am presently on hemodialysis (past 11 years). Yes, RLS commenced when I started dialysis. I do dialysis three nights a week and those nights RLS becomes a torture since I have to stay put in my bed trying to finish my treatment of 6 to 7 hours. I would do more dialiysis but I cannot imagine being tied up to the dialysis machine and suffering from sever RLS for most of my treatments (around 80 to 90% of the treatment I am wide awake and just trying to cope with RLS. I am taking Clonazepan (2 mg on dialysis nights; 1 mg on non-dialysis nights) and Sinemet (25 mg every night), which have somehow helped me. Lately, however, they seem to make no effect.

I am looking for some other systems that would allow me to basically sleep. I am chronically sleep deprived as I am sure you will all understand. My life is going really bad....

I am about to try other stuff, like grounding recovery systems and/or these circulation boosters. If you had experiences with either, I would appreciate if you could share them with me and the other folks in this forum.

Cheers,

maqex