Restless Arms

[dessaur]

Hi I have suffered RLS for more years than i care to remember , I have tried every tablet possible but all to no avail, what i would like to ask is does anyone suffer restless arms exactly the same feeling but in the arms , I now have all 4 limbs going crazy at night , I would just love one night where I can sleep .

[nightdancer]

Yes, now in RLS material it says it includes arms, legs, shoulder baldes, in the torso, etc. I get all of that, and lots of people do. when you say you have tried everything as in meds, could you list the ones that you have tried for some more background? Thanks!

[dessaur in reply to nightdancer]

Hi

my doctor put me on quinine tablets years ago now they did not work , so then i tried a mild anti depressant , doc assured me it would help it didnt , i take all the vitamins etc , i have had aromatheropy massage which did give me a few good nights sleep then back it came .

i have had all the different painkillers which doctor said would help , but i sometimes think it was a case of give me anything to shut me up . had lots of blood tests and because they are said to be ok i just get told to carry on with the tablets . earlier this year i was put on a low dosage of ropinrole but made me feel unwell so back to the drawing board.

i find i must keep my legs and arms cool it does not stop the symptoms but the hotter i get the worse they get , it really does not help that i am in the change so hot flushes make things worse

I would just love to go to bed and sleep but if i get 3-4 hours a night i have done well some days i feel like a zombie

[peterk]

That's the one place I don't get it. It's true though that people get it in the arms and all over. Sleep derivation is terrible. We all get that. Some of us seem to have sleeping meds and others, like me, are not given them. There are a lot of meds so night dancer is rightif you could say which ones you've had. Also some medications make the situation worse for some people. Tahe ledronic Acid I have to take for osteoporosis definately aggravates my RLS beyond belief. However can't stop that because the nightmare of being in a cast is not worth thinking about!

[Hidden]

i get it in my arms ,legs and any where it can think to strike gggrrrr many sleepless nights enough to drive you round the bend at times when you go 2 or 3 nights with no sleep forget the last time i had a full night , I've tried many if not all the meds they give what they use for Parkinsons only to make it worst hell of a lot worst ,

Peterk thats one my biggest fear how would we cope if in a plaster cast i dread to think .... other than cutting away at it to get it off ....

[landman]

I do not know the difference between RLS and Parkinson's, but I used to have a problem sleeping at night because my arms and hands have a tremor. I am seeing a neurologist and diagnose is Parkinson's. Along with meds I smoke pot and that settles me down the best. As for drugs, I take Azilect, Amantadine, & Neupro patch. Are you seeing a neurologist?

[Hidden]

I've found the Neuro patch 100% effective for control of RLS in the arms.

[lynnwin]

Hiya everyone this is my first post ,i was ill about 8 years ago had loads of tests and no one new the answer anyway to cut a very long story short ,i recently got the symptoms back ,burning prickling aching legs couldn't sit down dreaded going to bed ,and it was now in my torso and arms ,saw a different GP and she said RLS ,no one had said this before and i had spent hundreds of pounds all over the country even went to Harley Street in london trying to find out what was wrong plus loads of tests ,anyway i thought my gp had lost the plot till i read up on rls and also rang the RLS helpline .I didn't want to take the meds my gp was offering so i decided to have a Full Vitamin and mineral blood test done by post (gp took the blood) i sent them to BIo lab in london the results went to my GP .I found i was deficient in ,VItamin E ,Vit B6 zinc,and alpha carotene.I checked and found zinc,vitaminE and b6 can contribute to RLS ,so have been supplementing and now i am having alot of good days some days no RLS symptoms .Years ago when i was first ill i had all my Almalgam fillings removed (has to be done safely) and detoxed the mercury and did feel alot better and looking back maybe it was because of all the vitamins and minerals i was taking in the detox.Hope this helps take care lynn

[Jonkil]

hi all. I have been on 3mg of ropinirole since feb this year seemed to be working fine till a few weeks ago when out of the blue my arms decided to develop a mind of their own.went to the doctor who looked at me as if I was mad I am now on the max of 4mg of ropinirole got a blood test tomorrow after the results come back from that will hopefully have a better understanding of what is going on. I also take tramadol for a unrelated rls problem and I find that on most days those combined with the ropinirole do tend to knock me out not exactly a refreshing nights sleep but beggers cant be choosers now can they

[Martyrtothecause]

Hello Dessaur,

Like you I too suffer with my legs and arms. Changing medication helps for a while, but given time the discomfort returns with vengeance.

I was visiting the Tower of London yesterday and found myself, (yet again), admiring at the torture rack. That always looks like the perfect tool for relieving my RLS. I just feel that I need to be stretched out. " Take me up another notch".. Ecstasy!

Think I'll start looking on ebay...

Alternatively I think I'll give lynnwin's example a try and ask my GP for a full vitamin and mineral blood test..

[missteal]

Hi, I get it in my legs, arms, pelvis (which can look very funny) and have even had it in my neck. For years I thought it couldn't be RLS because it wasn't just my legs!!