Restless Arms Syndrome?: Does anyone... - Restless Legs Syn...

Restless Legs Syndrome

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Restless Arms Syndrome?

ATurtle profile image
21 Replies

Does anyone have arm spasms as well as leg spasms? I woke the other night with my legs going mad and my arm jerking as well, the reason I had awoken? I'd given myself a black eye!

At the moment, on a scale of one to ten, the restlessness is on about a twelve and I'm averaging about five hours a night and it's affecting my short term memory.

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ATurtle profile image
ATurtle
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21 Replies
Madlegs1 profile image
Madlegs1

Hi - welcome- what's your medication history?

ATurtle profile image
ATurtle in reply to Madlegs1

Gabapentin (Just come off Oramorph), Ropirinole, Ibuprofen, Levothyroxin, Metformin, Amitriptylene, Indapamide, Omeprazole, Perindopril and Atorvastatin

Madlegs1 profile image
Madlegs1 in reply to ATurtle

OH MY GOODNESS!

You are a walking pharmacy.

I don't have time to go through all the medications or even to figure whether you actually need to be on all of them at once.

I can pick out the Ropinerol as probably causing your full body rls- if you have been taking it a while and increasing the dose. Search Augmentation.

Also the Amitryptoline is generally regarded as a cause of major distress for rls sufferers.

It would be an idea to talk to your pharmacist on a quiet day ( for them) and review your medication completely.

Cheers.

John_naylor profile image
John_naylor in reply to Madlegs1

Omeprazole is also a trigger for me and many others also.

Madlegs1 profile image
Madlegs1 in reply to John_naylor

Thanks , John.

mwsteele profile image
mwsteele

I've had the pleasure of waking myself up with my twitching arm which smacked me in the face while asleep...talk about a rude awakening!!

datsoon1 profile image
datsoon1 in reply to mwsteele

unfortunatly i have knocked my dog off the bed when my legs have started at night,the poor thing looked at me with such a look that could have said what the hell was that for..

Pippins2 profile image
Pippins2

What Madlegs said plus just picking up on you recently coming off Oramorph. Stopping an opiate can cause a temporary worsening of RLS. What dose is your Ropinerole? X

Joolsg profile image
Joolsg

What Madlegs & pippins have said^^^

Maureen133 profile image
Maureen133

Yes,I get it in the arms as well.try running cold water over your wrists.

Bublgum profile image
Bublgum

Yes, I sporadically have arm spasms. When I do I will raise both arms while I'm in bed and slowly pump my fists until I can't hold them up anymore.

On the restless legs, it sure does help to walk out into the cold. Calms the electric jolts running through my legs

datsoon1 profile image
datsoon1 in reply to Bublgum

hi bublgum, i thought it was only me who walked on cold concrete to try to calm rls

Eryl profile image
Eryl

Yes, I get it in the arms and hands as well. It was when it got that bad that I started to look for a solution. I've found it to be food related.

RupertMac profile image
RupertMac

Yes I get in my arms too (or more specifically my left one). It is quite common for RLS sufferers.

John_naylor profile image
John_naylor

For me it is restless limb syndrome, legs and arms in equal measure. It often starts in one limb and as it eases the next starts up. Worst nights it does 2 laps!

Beckonwood profile image
Beckonwood

Yes around 5 pm every evening my hands and arms drive me nuts. At least when I get the movement in my legs I can stand and walk to stop it. But when it's in my hands I can only rub them and that doesn't really help. I take Percocet which really helps me most of the time. I would rather take something else because of the negative attitudes toward pain killers but have tried all the other meds for restless legs and eventually they stopped working or made it worse.

Mrappleton profile image
Mrappleton

Yes I have the same sensations in my arms as well and I think my last GP who diagnosed me with RLS expected it to follow. I know it is related because it is exactly the same sensation (undescribable) as I get in my legs.

ATurtle profile image
ATurtle

Thanks for the advice. I shall try it, perhaps it is the walk from bedroom to lounge over tiled floor that helps then. That's the legs sorted, now for the arms!

lorrinet profile image
lorrinet

I have always had full-body RLS. According to American research I read about 12 years ago, around 20% of those most severely affected have this. My doctor initially denied my self -diagnosis of RLS because, she insisted, "you can't get it in the arms". So I downloaded a large amount of US research data which, to her credit, she read, and now fully accepts it to be the case.

Maureen133 profile image
Maureen133

I,too,get it in my arms try running cold water over your wrists.

flailingman profile image
flailingman

That sounds scary to me . As the condition advanced into my entire body, my partner got punched as I slept. this condition is so tormenting and hard on the mind. there have been milder tortures used to break the mental state of the victim. And many of us have to endure decades of this hell. It makes me have to laugh at the crybabies who run to a safe place because of hurt feelings.

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