As I have the luxury of internet access for a very short while i thought i would share with you all my experiences of being in hospital with RLS. Last Monday 24th i was taken into hospital with a severe asthma attack, I have been asthmatic since birth, this is part of me, so I am used to it; what I was NOT used to was the suffering with RLS whilst laid up in bed, with no puff to move. This recent attack was my most serious for about 30 years, serious to the point where my oxygen levels were 1% away from me needing to be ventilated to breath - I was scared believe me. But this is not about the asthma; this is about the experience of being bedridden with RLS!
I was very surprised when a young junior doctor, actually acknowledged the condition, and spoke to me at length, wanting to know if I had any treatments for it or not, just the fact that he didn’t say ‘what ‘s that?’ was reassuring to begin with, later when the nurses came and introduced themselves (I was in the High Dependency Unit so had nurses on hand 24/7) to me, they actually took my concerns seriously, they tried their best to make me comfortable and actually LISTENED to what my needs were. One in particular had a few ideas of what might help and asked me about massaging my legs, extreme temperatures etc., and helped me to get as comfortable as possible.
I just wanted to share that from an RLS perspective, the stay could have been much worse, as it was, I had cool sheets, cold compresses, and as much as possible sitting up with my legs over the edge of the bed allowing me to swing my legs to and fro. Compared to my last stay 18 months ago, there was no ‘fight’ to get it recognised; there was a willingness to help. A very positive step I am sure you will agree!