Hello, I am new here and I found this site a couple of days ago when I was "surfing" in the middle of last night, trying desperately to find out if there was anything I could do to help me cope with my rls.
I have had rls on and off (usually only mildly) since I was about 8 - knew what it was because both parents have it too. But for the past few years it has been getting much more difficult to manage and, at the moment, it is driving me mad! Both legs and arms are affected and, when it is at its worst, I am up most of the night because I can't lie in bed and can't sleep.
I have a number ot other health conditions so am pretty used to lack of sleep, but the rls at the moment is something else! Have been trying to wean myself off prescription codeine (prescribed for another condition) because it gives me really bad stomach problems but it's a bit of a catch 22 really because it does help the rls to some extent. Tried a Temazepam for a change before bed the other night and felt really optomistic that I would get a better night's sleep. But it lasted 2 and a half hours before the rls woke me and I had to get up.
Because of other health stuff, I spend a huge amount of time just sitting at the moment and I have found that the rls can be a problem during the day as well, (although nothing like as much as at night time).
On a positive note, my doctor prescribed Liquid Oromorph (liquid morphine) for me yesterday to see if it would help me sleep through the rls and I am thrilled to say it worked! I took some during the afternoon which meant I could sit relatively comfortably during the evening, and a further dose before bed which gave me four and a half hours of uninterrupted sleep which is pretty much unheard of for me! I hope it's not just a "fluke" ! Just wanted to share this incase it might help someone else.