Can I take mirapexin tablets with the... - Restless Legs Syn...

Restless Legs Syndrome

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Can I take mirapexin tablets with the neupro patch??

Rish profile image
Rish
21 Replies

Hi , my doctor will not up my dose on the neupro patch and I have 6 boxes of mirapexin tablets as I just got my prescription befor the doctor put me on the patch! Is it safe to use them both together?

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Rish profile image
Rish
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21 Replies
Gannet profile image
Gannet

Hi, I don't think it would be a good idea to mix the two together but your pharmacist should be able to advise you

they are both dopamine, so not sure its a good idea

Hi Rish, i dont know why your doctor wont up your patch, the leaflet says you can up the dose each week until you reach the dose needed to get relief. But for some a week is to long to wait, and i know i had to up mine before the week was out.

I have heard of people who have used both the neupro patch and a small dose of mirapexin, but as i havent done that its hard to advise you to do it.

As you were on mirapexin before the patch, depending on what your dose was, then the patch might not be enough at 1mg. Your doctor should understand that.

Rish profile image
Rish

Thank you for your advice I was that tortured before that I have taken two mirapexin tablets with the patch I was going crazy! I feel fine but I know that there are dangers but to be honest when I am in a tortured frame of Mind I don't care! Doctors do not realise this and how we suffer! I will up the patch myself and see what happens. Thank you all hoping you are getting rest to :-)

Rish profile image
Rish

Ah well guess having two patches on still does not work for me:-( I don't understand why they are not working! I have my legs going crazy and now my arms ! Dear me will it Eva end!!

Tpebop profile image
Tpebop

Hi, until recently, when my doc refused to renew my prescription for the patch 'cos of cost reasons, I was on 3mg/24hr Neupro. The patch is a weird thing and I'm really glad I'm off it 'cos of the side effects of extreme tiredness. To answer your question: I took both and didn't seem to have any bad reaction. Neupro isn't like the other meds it builds up gradually so you can't just take it and experience relief within a short period of time, which I was used to with other meds. It didn't always work at night, so in an effort to get relief I took some old 0.088mg mirapexine tabs, which worked a treat. I'm now off the patch, using mirapexine again, suffering no night RLS and don't feel as tired during the day as I once did. Grud knows how long it'll last though... Remember: we're all different, what works for one doesn't work for all; seek medical advice if necessary.

in reply toTpebop

hi, i used the neupro patch, and it worked straight away for me, within an hour almost,

eileen49 profile image
eileen49

is mirapexine better than ropinorole ? I take 2 or 3 patches at 6 pm and maybe 1 ropinorole later at night if its really bad cos they only take an hour to work whereas patches takes up to 5 hrs to work but ropinorole make me groggy and snappy next day and patches leave scars and itch !

Rish profile image
Rish

I tried Ropinerole but after a few weeks it stopped working ! I just don't get how the patch worked for 48 hrs then stopped even with two on it does not work:-( so I took my mirapexin and finally got 3 hrs sleep.

Is there 2 mg and 3mg patches or are they all 1mg and you put 2 or 3 on for the right dose???

in reply toRish

there are 1, 2, 4, 6, and 8mg mg patches that i know of

in reply to

There are 1, 2, 3mg patches which are the doses for RLS...above that dose and you are going to what someone who has Parkinson's disease would use.

in reply to

as i well know with my doctor, got pushed to 8mg, until i said "enough". but ive not had 3mgs, went from 2 to 4.

in reply to

Hi hun, yes i know he did, i dont know why he did. You were right to say no..... :)

Tpebop profile image
Tpebop

Yes, they do go up to 2mg and 3mg/24hr patches. However these are expensive per box and, as I have found, this can be a driving force in a GP prescribing them...or not. I suspect a box of 1mg/24hr, where the patient puts on one or two is cheaper (how?) thatn buying a box of 3mg/24hr. This may be a feature of our treatment with upcoming NHS changes: will our docs afford our treatment?

lilacladyuk profile image
lilacladyuk

Hi I am on a 4mg patch daily and half a 0.35mg mirapexin in the evening.I would think it is ok as my Doctor knows i take then both together. I am still not free of RLS as i still have trouble trying to sit and relax but i do sleep a bit better. At the moment i am waiting to go to Bristol Frenchay Hospital to see the Neuro Surgeon about having DBS as my Hospital in Plymouth have nothing else to offer me as i have tried it all, they say i am the worse case they have!!! I am just glad i found this site as now i know other people understand what you are going through.

Rish, it may just be that the dopamine agonists dont work for you, they dont work for everyone for whatever reason.

Looks as if you will have to try a different class of medication for your RLS.

If you tried the 2 1mg patches then i should have thought you would have got a good nights sleep.

They are very expensive for the NHS to treat us. My doctor is good enough to let me have mine, but was cautious as he said if they didnt work then they would be a waste of money if i couldnt use them.

Yes, Tpebob the 1mg patches are cheaper and i think the 2mg are the same, but 3mg i think are dearer if i understood what my doctor said.

in reply to

they are expensive, i asked my pharmacist, and he says around £100 for a months supply, but we pay for the nhs dont we

Tpebop profile image
Tpebop in reply to

Hi Niah, yes, we do pay for the NHS but things they are a'changing! Without getting too political (and I ain't party political at all) and as someone who has worked in the NHS for 35 years, we need to realise that we may have problems on our hands and may have to do some campaigning. You may've already heard of the concept of the "postcode lottery", well now the new government NHS legislation aims to give control over funding etc to GPs. Before, money was given to GPs by various outside bodies. I suspect that some GPs have woken up to the idea that they will control an increasingly limited budget and will pass this new-found financial constraint on to us...

in reply toTpebop

You could be right, and i dont agree with what the government is doing. I hope my doctors will still give me what i need for my RLS, my doctor who treats me for my RLS, knows how much trouble i have with all the meds. and is a star as far as i am concerned when i see him and so far has given all he is allowed to, for me to try, hope it continues like that in the future. I would hate to have a battle on my hands to get treatment for my RLS...

yes times are changing, but as i said, we paid for it, around 47 years in my case

jumpylegs profile image
jumpylegs

Yikes..... £100 per month for the patch. I was going to ask my doc about this.... I guess I could ask about Requip slow release, I am already taking requip/ropinerole but cos I have symptoms 24/7 it means 5 doses daily.... plus tramadol or codeine for breakthrough. The idea of one dose daily sounds great.

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