I first noticed symptoms when I was pregnant 18yrs ago. I suffered in silence for a few years . My symptoms were left leg 24/7 , worse at night or when relaxed. The sensation feels like an electric current going though leg but fluttery around, never intense in the same spot for more than a few seconds before going to another spot. It flits betwee side of foot, top of foot, calf, front of leg, knee area , groin, and thigh. When my sleep pattern is worse than normal it goes into other leg or arms. Currenly have it in my left arm and left leg. Feels like need to move limb to get relief but only helps if I keep moving, as soon as I stop sensation back.
Doctor referred me to a specialist can't remember what type when as seen a few but they decided my nerves were being irritated by chemicals leaking out of a torn disc so had a back op to remove and fuse all sounded feasible at time but guess what after morphine wore away symptoms still there.. They then decided I had permanent nerve damage but how can that be when sensations peak and trough. I have been guinea pigged on all the tablets over the years as they were just coming on to Market. The only thing that helped for a while was over the counter soluble co coda mol better relief than the likes of gbapentin however finally came immune to that and the only thing that helps now is combination of tramadol and amytriptiline . I. Have asked doctor why he doesn't believe I have RLS and he said because I have it mainly in left lleg and if I had rls would have it in both legs all the time !!!
Inow strongly believe it's an inherited condition as my father was always rubbing at his legs and moving them but was told he had furred arteries caused by his diabetes which may well be true but I am now wondering because my 18 yr old is complaining of a crawling sensation in his legs for the last couple of hrs keeping him awake but not as bad as mine but I guess that could be because it might intensify over the years as mine have! What do you think?