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Restless Legs Syndrome

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Vagus Nerve Stimulation

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14 Replies

Has anyone tried Vagus Nerve stimulation for their Parkinson's?

If so what were the results and what was used to stimulate it, etc.?

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14 Replies
Amrob profile image
Amrob

Hi, did you intend to post this in the Restless Legs Syndrome forum?

Madlegs1 profile image
Madlegs1 in reply to Amrob

It is relevant to rls and has been raised on this forum before..

Kaarina profile image
KaarinaAdministrator

healthunlocked.com/rlsuk/po... You may find this past posting of interest.

SueJohnson profile image
SueJohnson

You might want to post this in the Parkinson's community to get more results.

Rayme profile image
Rayme

I've bought one and will give it a go for RL (it hasn'arrived yet). It'It's an experiment as won't really know the 'right' intensity, or time. I saw Garahams post about the trial (the one Kaarina has posted above) and am curious. Maybe more clinical trials will be done to take this further. I keep on hoping as this is a miserable syndrome and I'm grateful for any research.

Irmajs profile image
Irmajs

I never realized there could be a connection between RLS and the vagal vagus nerve. Have had RLS for about 8 yrs. For a few years now I have experienced unexplained nausea which sometimes leads to throwing up. To be totally honest, It seems to happen the most when on the toilet. I tried deep breathing etc to calm it down. I was told that it is from an out of wack vagus nerve. The strangest thing is one of the ways to heal it is to sing, hum, gargle. Feeling like an idiot, I started doing all those things all the time and it all stopped, no more nausea. Now I never noticed if if was helping my RLS or not because I never thought there was an association. Now I will pay attention. If you search the vagal vagus nerve and nausea, it will explain it all. The body is truly an amazing thing.

CsiguZ profile image
CsiguZ in reply to Irmajs

There are theories that RLS is a cause of GI issues, especially SIBO. Vagus nerve is strongly connected to the gut and one of the reasons one can develope SIBO if vagus nerve not functioning properly.

Irmajs profile image
Irmajs in reply to Irmajs

health.clevelandclinic.org/...

CsiguZ profile image
CsiguZ

I’ve read somewhere that there are theories if gut issues, like bacterial disbiosys could lead to Parkinson’s and everyone who has developed it had constipation way before the first signs of this disease. Our gut is strongly connected to our brain via the vagus nerve. May I ask if you had constipation as well?

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Trailing in reply to CsiguZ

Exactly. I was not that aware till my husband developed Parkinson's that he has had constipation most our married life.

Bridall profile image
Bridall

I definitely think the vagus nerve is linked to RLS. If I get it I do exercises for this on the calm app and it helps me in the evening when watching the tv and in the night. I am taking vit E 400g at the moment which is keeping it at bay.

Trailing profile image
Trailing in reply to Bridall

Yes I've come to discover that the vagus nerve has much to do with many of our diseases.

Merny5 profile image
Merny5

There are some studies that have indicated VNS has been effective for RLS symptoms. However, the studies I have read consist of low number participants. There seems to be more evidence that it is effective with PD patients.

eliz45 profile image
eliz45

Hi. The vagus nerve is involved in a very large number of problems. I have A-fib and have tried to investigate what causes it. It is paroxismal, which means it is not caused by the heart. So this is what I have learned so far. If you have arthritis in your neck, you can irritate the VN by moving your head. If you wear hearing aids, you can irritate it because a branch of the VN runs under the ear canal. If you have bloating, you can irritate it because you are putting pressure on it. If you drink too much cold water all at once, you can irritate it. If you have a hiatal hernia, you can irritate it. If you have indigestion you can irritate it. If you have explosive diarrhea, as in colitis, you can irritate it. If you are constipated, you can irritate it. And those are just a few I have experienced myself. So it seems like RLS could also be another place where the VN causes problems, especially if you have digestive issues. There are so many supposed causes of RLS, and the diagnosis is not always clear, so some day we may find out the VN is directly involved.

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