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Restless Legs Syndrome

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Bilateral high-frequency noninvasive peroneal nerve stimulation for RLS

thorp profile image
5 Replies

i have read the Journal of Clinical Sleep Medicine 2023 Jul 1;.The article is entitled

Bilateral high-frequency noninvasive peroneal nerve stimulation evokes tonic leg muscle activation for sleep-compatible reduction of restless legs syndrome symptoms

I note also in the new American Academy of Sleep Medicine clinical practice guidelines in the Journal of Clinical Sleep Medicine jan 2025 they conclude;

Bilateral high-frequency peroneal nerve stimulation, an innovative treatment developed in the years since the previous guidance was published, received a conditional recommendation of support. Treatment involves the use of a wearable device to stimulate the nerves in the legs before bedtime.

Notrix Health , a firm in California, apparently produce such a machine now which produces the same effect on the nervous system that walking around will do.

It is called Nidra wearable therapy

Notrix are advised by Dr Buchfuhrer. So they are getting good advice

Has anyone tried a Notrix machine.?Did it work for them at all? Are they expensive?

many thanks for your help

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thorp profile image
thorp
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5 Replies
SueJohnson profile image
SueJohnson

There have been lots of posts on this. Put Noctrix in the search box to see them.

It is only available in the UD and only in some states.

teakabeagle profile image
teakabeagle

I participated in the study. I found it modestly beneficial under certain circumstances. I think it would work best for symptoms in the mild to moderate range.The cons in my eyes were having to wear the bulky bands and the difficulty in turning it on without turning on the light and really waking myself up and not getting back to sleep. The biggest problem to me was the battery life. It only gives you two 30 minute sessions before needing to be recharged. I only had moderate relief for about 30-45 minutes after use. As I have symptoms from about 9 pm to 6 am it is not enough relief to pay $7500. I was told they could not improve the battery life or , make the unit smaller. Perhaps that has changed.

violetta254 profile image
violetta254 in reply toteakabeagle

That doesn't sound very good for all the cost and effort. I get the same response from a small Pulsio massager that I bought for 70 dollars from Amazon. And the battery life is way longer. And I can start it without turning on the light! And no bulky bands. And it only takes 5-10 minutes. I probably get 3-4 hours of sleep, at least enough for a REM cycle before I have to turn it on again or it's time to wake up. I do take methadone also so my RLS will only start about 3-4 am on some nights and doesn't start at all on others..

LotteM profile image
LotteM

It is called TOMAC. Maybe that name sounds a bell.

707twitcher profile image
707twitcher

I use it. It works well for mild symptoms. I've been trying to reduce my buprenorphine dose (to lessen side effects), and it comes in handy when I get break-through symptoms due to the buprenorphone dose being a bit too low. It often lasts all night after one or two 30 minute sessions. But there are times when it does nothing. I consider it a secondary tool in my bag of RLS treatments. Not worth the cost if my insurance hadn't covered it. But I'm glad to have it.

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