Years ago, I heard a comedian call RLS the terminally annoying disease and I laughed. Now I know better. Yes, RLS is not going to kill you, but it may make you wish you were dead on occasion! All the women in my family have some degree of RLS. I remember watching my Mom shake her leg while she sat when I was only a toddler. Now I know why she did it. Sitting completely still is not an option when your legs are going crazy inside! Now I have two adult daughters and they have RLS also. Ours, thankfully, is not as bad as some I read about on this site, but it is horribly uncomfortable and interferes with our lives almost daily.
I won't take drugs for my RLS because I am more afraid of chemicals I can't spell than I am of sleepless nights. I use compression stockings. I use Magnesium oil spray and that helps a lot. I try to take long walks daily. I take Paracetomol in the evening. I take vitamin supplements. I drink lots of water and have found that drinking red wine makes the RLS much worse. I hate that! I love red wine. I also avoid aged cheeses (I miss them). It seems that a lot of the things that make migraine worse also affect RLS. Sometimes my RLS also invades my whole body and the only way to treat that horrible, insane feeling is to go to bed. If sleep comes, that is success!
My heart goes out to all of you who have this affliction much worse than I do. Don't give up. Keep trying to live your lives the best you are able. Give thanks for the good days. Support one another. This site is a wonderful place to vent and share information. Use it.