BBC feature on rls.

[Dotmowatee]

Noel Titherage from the BBC has now produced his feature on the BBC news channel. It can be seen from today. Different people tell their stories of the effects of dopamine agonists.

[Joolsg]

bbc.com/news/articles/cgkmr...

This is one of the news articles.

BBC South will show an interview at 6.30 tonight.

[Dotmowatee in reply to Joolsg]

Yes that's it. Glad it will be shown. Noel Titherage has done a great job. Many people do not realise the consequences of taking this drug.

[Joolsg in reply to Dotmowatee]

I absolutely agree.All dopamine agonists have caused so much suffering over the years.

I suspect the percentage suffering ICD is VASTLY under reported because people do not make the connection to the drug. ICD can happen YEARS after you start. And no one reports it!

There will be a tiny minority of patients that do not experience augmentation.

[Snoops112233 in reply to Joolsg]

I think it also people don’t report ICD because of the nature of some of the issues it causes

[Joolsg in reply to Snoops112233]

Yes. People feel shame. Even though the drugs are responsible and cause a complete personality change.

[Oscarcat63 in reply to Joolsg]

I have a suspicion that ICD may be underreported especially when DAs are given for Parkinson's as well - as PD eventually causes 'dementia-like' symptoms (So I've been told). So a change in personality is probably put down to 'dementia' and not L-dopa.??

[Joolsg in reply to Oscarcat63]

I suspect the same. A number of people have made similar comments to the recent news articles.

[Snoops112233]

Here is the interview I did with Noel - bbc.co.uk/sounds/play/p0kx91mz

[Oscarcat63 in reply to Snoops112233]

Thank you, thank you, thank you !!!!(Just listened here in Tasmania 🙃

[Snoops112233]

Following the BBC news today, please if anyone wants to contact me via email (address deleted for your own security) with their story, I will do my best to a) help you and b) if you give me permission, to use your story (no names involved) going forward. Let’s do this xx

Please contact Snoops via private message (Chat) - Kaarina

[Kaarina Administrator in reply to Snoops112233]

I am sorry Snoops but I have to delete your email address for your own security. It is against HU rules to post email addresses etc. Anyone wishing to contact Scoops can use private message on here (Chat)