🦵 Getting my life back

[Annieapple]

I have been on the Neupro patch for well over 10 years prescribed by a neurologist. I have been experiencing severe augmentation & resorted to my GP for help as I recently had brain surgery & am still recovering. She has been FANTASTIC. We stopped the Neupro by first cutting the 2mg patch into 6 then 1mg patch in 4 & came off it over 2 months. Pure hell but she prescribed Codeine to help me through this. I stopped altogether on Thursday the weekend has been absolutely horrible but last night I only took codeine at 6pm & midnight & managed to get through until 7am instead of walking all night as I did Thursday/Friday/Saturday Today I have felt almost normal.. my last dose of codeine was midnight. Starting to twinge now so will take codeine now & then whenever. However tonight I am starting on 75mg of Pregabalin & will see GP at regular intervals & up it by 25mg until I find the correct dose to control my symptoms. It’s tough but with an empathetic GP, will power & determination it can be done. 🎈 Hope this encourages someone else to give up the evil DA’s

[LotteM]

Well done, Annie. 💪🏻👏

I hope the pregabalin soon works. Either on its own or in combination with the codeine. It will take a while though, before your body will have adjusted to the loss of the DAs and your RLS will be stabilised.

[Annieapple in reply to LotteM]

Thanks Lotte! You are all wonderful & so appreciated!! X

[Joolsg]

Well done Annie. And your GP sounds wonderful. If only more were like her.

[Annieapple in reply to Joolsg]

Thanks Jools! You have all given so much help & encouragement! Much appreciated!x

[SueJohnson]

That's terrific! So pleased for you.

Remember it will take 3 weeks for the pregabalin to be fully effective.

[Annieapple in reply to SueJohnson]

Yes that’s what the GP said hence the codeine. Thanks Sue for all your original help! Much appreciated… and helpful in my day cushions with my GP these past years.

[Biscuitface]

Well done Annieapple. Have you also had your blood work done? If not ask for a fasting iron panel. If you are taking oral iron you should not take it for at least 2 days prior to your blood test. Ferritin levels ideally should be over 100 mg/ml and trans sats20 to 45%