Clonazepam : Hi me again I am just in... - Restless Legs Syn...

Restless Legs Syndrome

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Clonazepam

Mikki01 profile image
7 Replies

Hi me again I am just in the mist of doing a complaint email to my doctors. Ok back on Nov I emailed my idiot neurogist and asked what I can swap to from ropinirole, I was told gabapentin was no good and wouldn't work for me. He never contacted me other from a letter from my GP who was copied in asying 28 500mcg of clonazepam had been prescribed for me to replace ropinirole because I said I believed it was making me have leg spasms. I was never told to ween off ropinirole just to pop one of these at night time before bed. Even though I had put in my email that my symptoms are so bad that I'm popping ropinirole at 2pm and cannot get to night time. So to then replace it with one night time pill with no instructions. I decided I couldn't cope with no daytime pills so never tool it and I formed my doctors who said ok amd carried on prescribing me ropinirole.So I'm building a case now as I've been completely let down.

What is clonazepam anyone? Is this something people take is it a DA. Honestly I could cry. Yes I am going to look at legal action I'm just getting all my information together and coping in all my emails so I can show my pleading with him. For what you are all saying is that you need to come off ropinirole before starting another one, how could he not know this and just prescribe clonazepam with no consulting me on anything how to take when to take do I wean off etc. He's just changed it because I said I wondered if it was the reason I had muscle spams. Funny enough since I've gone from 8 0.25 to 5. 0.25s I have noticed my spasms are less frequent and milder. I'm so frustrated I hope he comes back with the worst rls ever!

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Mikki01
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Mikki01 profile image
Mikki01

Clonazepam, sold under the brand name Klonopin among others, is a benzodiazepine medication used to prevent and treat anxiety disorders, seizures, bipolar mania, agitation associated with psychosis, obsessive–compulsive disorder, and akathisia. It is a long-acting tranquilizer of the benzodiazepine class.Found this:

Clonazepam belongs to a group of medicines called benzodiazepines. It's used to control seizures or fits due to epilepsy, involuntary muscle spasms, panic disorder and sometimes restless legs syndrome. It works by increasing the levels of a calming chemical in your brain called gamma-aminobutyric acid (GABA).

Does any one take this does it work is defo nit a DA is it and is one 500mcg enough can you take it in the day or just one at night max dose can yiu mix it with anything if it's not strong enough.

I cannot believe we have to ask each other on these things and not a doctor. Unbelievable

Joolsg profile image
Joolsg

pmc.ncbi.nlm.nih.gov/articl...

jcsm.aasm.org/doi/10.5664/j....

The new AASM guidance recommenda AGAINST clonazepam for RLS.

It's NOT a dopamine agonist but it won't help your augmented RLS.

As we've already advised- the only thing that will help you is to raise your serum ferritin above 200ųg ideally and to continue to taper off Ropinirole slowly with the help of a low dose opioid.

And your muscle spasms are severe RLS caused by Ropinirole.

I had them.

But never get them now I'm off Ropinirole.

Mikki01 profile image
Mikki01 in reply toJoolsg

Thank you for that I just need to know what to put in my email yes I have taken everything on board and will be doing all you have said an I really appreciate all the help and advise. Sorry I have been on so much, just needed help and guidance thank you again :)

SueJohnson profile image
SueJohnson in reply toMikki01

Clonazepam is mainly used to help one sleep but because of a long half life of 48 hours can make you tired the next day, Way back when it was thought to help RLS, but not anymore as it doesn't.

Mikki01 profile image
Mikki01 in reply toSueJohnson

Thank you Sue you are a fountain of knowledge :)

MyDucati profile image
MyDucati

I took clonazepam and it worked really well but only for a few months

I thought we’d found a cure but after a while my legs started jumping again

I can’t remember what dosage I was on but I took it once a day in the evening

Mikki01 profile image
Mikki01 in reply toMyDucati

What do you take now?

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