Clonazepam

[Mikki01]

Hi me again I am just in the mist of doing a complaint email to my doctors. Ok back on Nov I emailed my idiot neurogist and asked what I can swap to from ropinirole, I was told gabapentin was no good and wouldn't work for me. He never contacted me other from a letter from my GP who was copied in asying 28 500mcg of clonazepam had been prescribed for me to replace ropinirole because I said I believed it was making me have leg spasms. I was never told to ween off ropinirole just to pop one of these at night time before bed. Even though I had put in my email that my symptoms are so bad that I'm popping ropinirole at 2pm and cannot get to night time. So to then replace it with one night time pill with no instructions. I decided I couldn't cope with no daytime pills so never tool it and I formed my doctors who said ok amd carried on prescribing me ropinirole.So I'm building a case now as I've been completely let down.

What is clonazepam anyone? Is this something people take is it a DA. Honestly I could cry. Yes I am going to look at legal action I'm just getting all my information together and coping in all my emails so I can show my pleading with him. For what you are all saying is that you need to come off ropinirole before starting another one, how could he not know this and just prescribe clonazepam with no consulting me on anything how to take when to take do I wean off etc. He's just changed it because I said I wondered if it was the reason I had muscle spams. Funny enough since I've gone from 8 0.25 to 5. 0.25s I have noticed my spasms are less frequent and milder. I'm so frustrated I hope he comes back with the worst rls ever!

[Mikki01]

Clonazepam, sold under the brand name Klonopin among others, is a benzodiazepine medication used to prevent and treat anxiety disorders, seizures, bipolar mania, agitation associated with psychosis, obsessive–compulsive disorder, and akathisia. It is a long-acting tranquilizer of the benzodiazepine class.Found this:

Clonazepam belongs to a group of medicines called benzodiazepines. It's used to control seizures or fits due to epilepsy, involuntary muscle spasms, panic disorder and sometimes restless legs syndrome. It works by increasing the levels of a calming chemical in your brain called gamma-aminobutyric acid (GABA).

Does any one take this does it work is defo nit a DA is it and is one 500mcg enough can you take it in the day or just one at night max dose can yiu mix it with anything if it's not strong enough.

I cannot believe we have to ask each other on these things and not a doctor. Unbelievable

[Julesjewels in reply to Mikki01]

I started taking Clonazepam 2 weeks ago after a horrible night of non-stop active RLS. My neurologist believed it was due to withdrawing from pramipexole too quickly.

Now taking 1 mg of Clonazepam ( for 2 weeks now and it truly helps me sleep). Getting 6+ hours/night for first time in 30 years. Will resume titrating off Pramipexole next week. I may have to concede to using an opioid despite my preference to avoid them. (Of course won't take Clonazepam if opioid is started.) Seems like the decision to choose buprenorphine /methadone/oxycodone is a challenging one. Not sure what criteria to use to make that selection. I now know getting off this last .5 mg of pramipexole will likely take 6-12 months. I appreciate how open and honest everyone is regarding their struggles with RLS.

[Joolsg]

pmc.ncbi.nlm.nih.gov/articl...

jcsm.aasm.org/doi/10.5664/j....

The new AASM guidance recommenda AGAINST clonazepam for RLS.

It's NOT a dopamine agonist but it won't help your augmented RLS.

As we've already advised- the only thing that will help you is to raise your serum ferritin above 200ųg ideally and to continue to taper off Ropinirole slowly with the help of a low dose opioid.

And your muscle spasms are severe RLS caused by Ropinirole.

I had them.

But never get them now I'm off Ropinirole.

[Mikki01 in reply to Joolsg]

Thank you for that I just need to know what to put in my email yes I have taken everything on board and will be doing all you have said an I really appreciate all the help and advise. Sorry I have been on so much, just needed help and guidance thank you again

[SueJohnson in reply to Mikki01]

Clonazepam is mainly used to help one sleep but because of a long half life of 48 hours can make you tired the next day, Way back when it was thought to help RLS, but not anymore as it doesn't.

[Mikki01 in reply to SueJohnson]

Thank you Sue you are a fountain of knowledge

[MyDucati]

I took clonazepam and it worked really well but only for a few months

I thought we’d found a cure but after a while my legs started jumping again

I can’t remember what dosage I was on but I took it once a day in the evening

[Mikki01 in reply to MyDucati]

What do you take now?

[MyDucati in reply to Mikki01]

Gabapentin currently on 2100mg pending results of an iron blood test. They’ve been the longest lasting medication so far but still only been taking them for a couple of years

[amrob123]

Are you taking 5x 0.25mg clonazepam tablets? That's a hefty dose if you have just started on them. Did your neurologist say one tablet per night?If you come off clonazepam, do it slowly as it shouldn't ever be stopped suddenly. Especially when taking such a high dose.

[Mikki01 in reply to amrob123]

No I'm on ropinirole 5 x 0.25 got myslef down from 8 x 0.25 over the last few weeks due to horrendous augmentation. Muscle spasms and more for less 24 7 symptoms only get a few hours rest with my doses. But after being on here I know know I've been completely done over by my neurologist. After me complaining on several emails telling him my rls is worse and I have spams and is it ropinirole, and is there anything else I can take he prescribed clonazepam of which he told me no instructions on. Didn't even know what they were. So I'm doing what sue and jools have instructed, weaning off and speaking to my doctors next week, I've also been referred to another neurologist and I've requested DR Murphy if I have to pay private I will do. It's 12.41 and my legs are already starting to pull.

[ID158]

I was prescribed something similar to clonazepam (called temazepam) to help me sleep while I was coming off of pramipexole. And it worked for that purpose. But my understanding is that it should not be used as a primary means of treating RLS.

[Sleepy65]

horrible to withdraw from. I felt like I was wide awake at night for 6 months. I’ve tried most of the medications over the last 20+ years. I know a lot more about sleep hygiene than I did back then. Currently weaning myself off mirapex onto nothing, except more iron. We’ll see what happens.