Clonazepam and Other Mentionables Bring Relief

[Write4u]

I have been on clonazepam for nearly 30 years for insomnia. Though I've had RLS for longer than that, I never knew that it was helpful for RLS. If I take only clonazepam, the RLS symptoms are severe. What I find most helpful is staying on 2 mg of clonazepam, CBD from hemp oil, 1 mg of Ropinerole and a holistic supplement from Rejuvica called Restavin. Along with the RLS symptoms, I have severe leg and foot cramping during the night. The combination of what I just shared takes the edge off so that I can get relief. Not 100% but MUCH better. Hope this helps. God bless you. May He bring comfort to all those who suffer with ANY disease!

[Hidden]

Hello and thanks for sharing! I'm glad you are doing better, even if not 100%! My RLS is pretty severe as well, but I seem to be going through a good patch now. Even though my RLS is not 100% controlled, it is about 90% better than it's been and that is all I could ever ask for!

May these good times last for both of us!

[LotteM]

From your list of meds, I would vote for the ropinirole controlling your RLS, not the Clonazepam.

About the cramping, have you tried magnesium? Not magn oxide, but -malate, -citrate or - bisglycinate. That may help with the cramp. For quite a few people, it also helps with the RLS, although it has never been studied properly. But the anecdotical information is ample.

[Write4u in reply to LotteM]

Have tried every form and every protocol with magnesium without success. Vein doctor says that there are four veins in each leg that need to be glued. They have faulty valves and don't allow the blood to go back up to my heart. If they were shut off, healthier veins would take over. Says that MIGHT be attributing to the cramps and a chance that they are one of the reasons I have RLS. Because of COVID19, can't have procedure done till the crisis passes.

[LotteM in reply to Write4u]

If the cramp due to the faulty veins gets unbearable during this time, maybe you could ask the doctor when good support stockings would be of help. Of do you have them already?

[Write4u in reply to LotteM]

I so appreciate your input....but I also have peripheral neuropathy. I can't wear ANYTHING tight on my body. Dealing with a LOT!

[LotteM in reply to Write4u]

Indeed you are. Maybe the peripheral neuropathy contributes to your RLS. PN not easy to 'fix' either, as far as i know? Wishing you strength, perseverance and good luck.

[Write4u in reply to LotteM]

TY for the good wishes. I draw strength through my faith in God. I wish more people would do the same. Better than meds

[YodaDog in reply to Write4u]

Where do you experience the neuropathy, is it just in the extremities (i.e. toes), because it is for me and I sometimes where compression sleeves rather than socks? I couldn't stand wearing the socks because of my neuropathy in my toes, but the sleeves work well.

[Write4u in reply to YodaDog]

I have mortons neuroma in both feet so I cut out the toe part of my socks and have to wear sneakers that are 1-2 sizes bigger than my feet. My neuropathy is my legs, thighs, and buttocks. Compression socks are a definite no-no.

[DicCarlson]

OK - this is my theory and I'm sticking to it! I developed SEVERE RLS about a year after a head injury from skiing. It began as sleep disturbances for a few months then progressed to nightly leg cramps (lots of different muscles involved), then the RLS. After months of research (including finding this forum) I started on a course of Ferrous Bisglycinate Chelate, daily 18mg (also called Gentle Iron). My Ferritin level was 49 at the beginning, 105 after 3 months of daily supplements, and the severe RLS went away (not the insomnia). So - the leg cramps while not related to the RLS directly - ARE related to the low iron levels.

I just read this on a different forum...

"My hematoligist explained it best when he told me low iron causes red blood cell counts, now red blood cells carry oxygen to all organs and throughout your body. When your walking around during the day your pumping blood even if its less or low. But when you lay down not enough oxygen to your legs thus leg cramps."

Of course I'm talking about Ferritin levels in the blood - the real implication for RLS is low iron in the brain. How to raise that is the million dollar question!

[Write4u in reply to DicCarlson]

I agree...need to get my ferritin levels of iron checked. Will have to wait til the corona virus crisis passes as my doctors want me to remain isolated. Thank you for your encouragement. Continue to feel well!