Hi all. RLS was controlled by two infusions in 2023 through the Harvard Sleep Center, followed by Gabapentin 300mg to start, now up to 2400mg taken at 4pm, 6, 8 and 10. 50mg iron bisglycinate at 8pm, with vitamin C. Magnesium Glycinate 240mg mid-day. Ferritin last week 158. RLS has been getting worse for the last two months. Desperate now. Have sent message to Harvard neurologist. Waiting for reply. Cheating with Mirapex poison some nights to get some sleep. Any ideas? Switch to Pregabalin, Iron infusion.
I've been researching Traditional Chinese Medicine, TCM. In particular Radix Paeoniae. There is a lot of serious literature on the internet about the effectiveness of TCM and Radix Paeoniae in treating RLS! Here is a detailed study by the NIH in the US. Any thoughts?:
Thanks Sue. You really are amazing. I will study the links. Prior to my first visit to Dr. Winkleman's office, I had studied your recommendations and followed EVERYTHING that you suggested. Including months of painful withdrawl from Mirapex!. When I was seen at Harvard, they were "shocked" by how well educated and prepared I was. You are an Angel !!
Have you changed anything in the last 2 months? Medicines or OTC? Your lifestyle - eg exercise? What you eat?
It seems strange that it was controlled before and now isn't. You could switch to pregabalin - the equivalent would be 400 mg which can be taken all in one dose 1 to 2 hours before bedtime and increase it by 25 mg every 2 days, but somehow I doubt that will work. You may need to ask for buprenorphine. As I remember Dr Winkleman was your doctor and I am sure he would prescribe it.
Not much has changed, except that I have discontinued several medications, which were ok for RLS. My diet has improved considerably. I do take Diltiazem and Losartan for BP. Any thoughts on these? My bloodwork last week did not include transferrin saturation, which was strange. This may preclude an infusion.
Of course, I had forgotten that I asked you this question before. I had stopped Losartan several months ago, but started taking a low dose about two months ago. Ah ha! Time to seriously take your list of safe BP meds to my cardiologist.
The detailed studies on Radix Paeoniae Alba(White Peony Root) that were sited are impressive. Not some poorly researched articles in fringe publications. I think I will give it a try. Much better than the bar of soap that I slept with before I found this Blog!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Gabapentin not working anymore for RLS
usual dose of gabapentin not enough
TARGIN NOT WORKING!!
Morphine not working on RLS? Any experience?
Ropinerole not working
