Dreading going to bed tonight..........

[SwimLyn]

After an horrendous long night of Restless Legs/arms/back ,burning feet.tingling hair,constant peeing which didn't let up from 11pm when went to bed until 5a.m .this morning

I have been taking 100mg Pregabalin since September & advised to increase incrementaly by 25mg if find it necessary (I started on 25mg initially & have steadily increased } but am loathed to do this as am worried about relying on any drugs but don't seem to have an option if am to get any sleep!

It has worked intermittingly on 100mg with some nights of uninterrupted sleep which I am soo grateful for but then will have 3/4 nights of unabated severe RL & all its accompanying physical features which are nearly as bad.

I have my serum ferritin is fine & I have a neurology appointment in January BUT is there any advice anyone can give me to get through the Christmas period as will need extra energy reserves with all the festivities planned.

I take Vit B / Vit C & Multi vitamins supplements, magnesium cream, cold foot baths for my burning feet & Revitive muscle vibrating machine all of which sometimes helps ,sometimes no impact at all as last night proved .

Apologies for being whiney & complaining but am soooooo tired so please grant me a pardon & am really hoping that all of us sufferers can at least enjoy a restful rather than a restless Christmas & New Year

[SueJohnson]

100 mg of pregabalin is a low dose. According to the Mayo Clinic Updated Algorithm inRLS the usual effective dose is 200 mg to 300 mg so you might want to increase it by 25 mg every couple of days until you get to a dose that controls your symptoms. 450 mg is considered the maximum but you can even go up to 600 mg,

I remember you said you were dizzy and sleepy when you woke up in the morning. Did those side effects go away?

What exactly is your ferritin? Doctors will say it is fine but what is fine for others isn't fine for those of us with RLS.

[SwimLyn in reply to SueJohnson]

Heavy head/ dizziness gone now & no problem at least on 100mg dose.My ferritin result in Oct was 204 ug/L which I believe is OK according to hospital specialist..

I shall increase tonight & also bought some Co- Codamol (500mg) which I seen recommended on this forum as an aid to sleep.

Thanks Sue for your invaluable advice

[SueJohnson in reply to SwimLyn]

Yep 204 if fine and great that your dizziness is gone!

[SueJohnson]

Have you asked your doctor about your frequent peeing? One thing I found was getting an inexpensive set of test strips from Amazon for around $10 to test the pH of my urine. If it is below normal that can lead to increased peeing. Potassium can increase it.

[SwimLyn]

What is normal pH ?

[SueJohnson in reply to SwimLyn]

Normal is a wide range but a pH of 7 is neutral. You want it at least that and preferably slightly higher.

[SwimLyn in reply to SueJohnson]

Thanks again Sue will start checking tomorrow & have increased Pregabalin to 125mg tonight & raise it when necessary.

[Joolsg]

Revitive made my RLS 1000% worse. My feet would jump for hours in the night after use. So be wary. Perhaps use it early morning to see if it makes a difference.And as SueJohnson says, 100mg is a low dose. If you have severe RLS, you will need meds for life. So why suffer? Night-time weeing CAN be linked to RLS so if you treat the RLS properly with the right dose of pregabalin- it might also resolve the Night-time toilet visits. But also check hoi don't have a urine infection. You can now ask the pharmacist for antibiotics for urine infections. You just take in a sample, the pharmacist will test & give advice.

[SwimLyn]

Thank you so much for this advice as sorely needed @ the moment.Prwtty sure haven't got a UT I but will certainly check on it & have already increased Pregabalin to 125mg tonight & will graduate accordingly.

[BTABKWJ4561]

drink loads of water I find helps, avoid caffeine start walking soon as we feel the first sensation of RLS I Also take magnesium,hope you find these tips helpful.I also get RLS severely it can be terrible I know.

[SwimLyn]

Thank you for your tips - I feel I do drink a lot but then pay the price during night with constant trips to the toilet! Let's hope 2025 will find a break through eh ?