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Restless Legs Syndrome

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New book on RLS

nocturne profile image
13 Replies

I spotted a new book on RLS yesterday at the public library (in San Francsico, CA) called "Navigating Life with Retless Leg Syndrome," by Andrew Spector, MD (2024). It's a skinny paperback, but seemed quite comprehensive, and is written in a friendly, accessible, and not patronizing manner. It warns against the use of dopamine agonists, covers all manners of other medications and therapies, both Western and alternative, as well as drug interactions for other common illnesses. If you're new to RLS, I would recommend it.

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nocturne profile image
nocturne
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13 Replies
SueJohnson profile image
SueJohnson

He is a neurologist at Duke Health in Durham, NC and will prescribe buprenorphine. He will do video appointments for NC residents and was recommended by a forum member.

Purpleyam profile image
Purpleyam in reply toSueJohnson

Sue, what was the drug he talked about in combination with Gabapentin, it was formerly a stroke drug? D....? He said it was well tolerated even for patients after having taken DAs. Thx

SueJohnson profile image
SueJohnson in reply toPurpleyam

The study didn't talk about Dipyridamole in combination with gabapentin and there have been no studies on whether it is effective after being on a DA and many on the forum believe it isn't, especially after augmentation.

Purpleyam profile image
Purpleyam in reply toSueJohnson

That's disappointing, I suppose we keep looking for the next best treatment.

DicCarlson profile image
DicCarlson

I just looked it up on Amazon - looks excellent, just reading the sample.

Insomniak profile image
Insomniak

Many thanks for sharing

LotteM profile image
LotteM

Thanks for spotting, reading, reviewing and posting. Always useful.

nocturne profile image
nocturne in reply toLotteM

My pleasure! Thanks to all of you who replied. But a BIG kudos and thanks go to this site, which has taught me so much.

Pickyourpoison profile image
Pickyourpoison in reply tonocturne

This site is wonderful! Very excited about any doctor that does not recommend a dopamine agonist AND gives information about western and alternative medication!! so we’ll just get him, Sue and Doctor B together and we will all be doing much better! 😘.

Niewiem profile image
Niewiem

so you read the book, is your rls fixed than?

nocturne profile image
nocturne in reply toNiewiem

My RLS has been under control for two years. I saw the book a the public library, as I previously wrote. I skimmed through it, but neither checked it out nor read the whole thing. But I felt that the book was worthwhile, which is why I posted it here, hoping that it might be a helpful resource for some on this site. I would I highly doubt that RLS can be "fixed" with the current medical knowledge, if that's your main question.

Niewiem profile image
Niewiem in reply tonocturne

thank you for your explanation, we all wanted to help and share hoping that it will help others. Books are copies of what we all know already same like asking AI about rls, gona tell you go see GP, haha.

Northernchap profile image
Northernchap

Also available in UK. Just change amazon.com to amazon.co.uk. £16.95 paperback or £16.10 on Kindle.

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