Buprenorphine

[Gonzo123]

My private consultant wrote to my GP requesting that they prescribe the above but they won't.

Can anyone tell me if there is evidence to show my GP that presribing this would be beneficial.

[Joolsg]

neurologyadvisor.com/report...

I am getting so annoyed at GPs.

If a specialist recommends a drug, the GP should prescribe it.

There are now at least 30 of us on this forum in the UK who have had our lives SAVED by Buprenorphine.

The Mayo Clinic Algorithm also sets out the average dose.

There is also the Massachussetts Opioid Register by top RLS expert Dr Winkelman.

It proves RLS patients stay on the same low dose for years without developing addiction or tolerance!

And your GP can read all the posts on here headed Buprenorphine.

massgeneral.org/rls-registry

I wrote a letter for another member to help her neurologist see the benefits of Buprenorphine.

I can copy and paste it and send it to you via private message if you'd like?

[Gonzo123 in reply to Joolsg]

Please my e mail is [e-mail]

[Joolsg in reply to Gonzo123]

Gonzo please delete your email and send via chat.

[Boldgirl45 in reply to Joolsg]

I’d also love this Joolsg. Another helpful member sent me a letter they’d written - I’d love to gather whatever I can !!

[Joolsg in reply to Boldgirl45]

Huntingleroy? I sent her the letter already, so it's probably the same one.

[Gonzo123 in reply to Joolsg]

Thank you very much

[Huntingleroy in reply to Joolsg]

Yes it was me ! I sent a precised version as i couldnt get it to copy and paste

[Joolsg in reply to Huntingleroy]

😁😘

[Boldgirl45 in reply to Joolsg]

Yes - thanks to you both !

[Jezee in reply to Joolsg]

Hi, please could you send me a copy of the letter as I've got an appointment with the neurologist next Sunday at Sunderland hospital. Thank you

[Joolsg in reply to Jezee]

I'm at RLS-UK AGM all day. Send me your email by 'chat' privately & I'll send tomorrow.

[Claire_1c]

Jools is 100% right. I'm one of those people whose life has been saved by Buprenorphine (thanks to the generosity of people on this forum). It's really worth fighting your GP on this - or move to a GP who will prescribe it if they won't budge.

Buprenorphine truly is life changing. And after a little initial sickness, zero side effects.

[SueJohnson]

You shouldn't use your email as this gives away your idenity and that isn't allowed. You should delete it. Joolsg meant to use the Chat function at the top of the screen.

[Gonzo123 in reply to SueJohnson]

Didn’t know that

[SueJohnson in reply to Gonzo123]

So delete it. You can click on More and then Edit.

[Joolsg in reply to Gonzo123]

Gonzo, I've sent you the letter by email.

[Gonzo123 in reply to Joolsg]

Got it thanks

[davchar23]

Dear Gonzo,

Thanks to Joolsg I am one of those people whose life has been "saved" by her guidance on this forum and a patient and understanding GP. There is so much evidence around thees days about the benefit of low dose opioid for RLS that i cannot understand why GPs do not get their act together.

Buprenorphine (in my case at 15mcg/hr or 0.36mg/day) had side effects (annoying not really harmful) but with patience and experimentation i have been able to control nausea , sweating, constipation and varying half life.

As Joolsg says the situation where a consultant says yes and GP says no is simply no on!

Good luck

Davchar

[Jodelights]

Hi Gonzo 123.I can only give you my own personal experience about Buprenorphine which I use for pain relief for many other conditions. I was prescribed it in 2015 by my consultant for pain relief starting on 5mcg and working up to 15mcgs which I have been on for a few years at this strength. Anyway, last Christmas one disaster after another with supply issues!! meant I went 5 days without my patch, so not only was I in pain for several days but my legs drove me bonkers and not even my pramipexole which usually does the job for me touched the RLS... I had no nasty withdrawal effects from the patch at all, and as soon as I was able to collect them from the chemist, I put one straight on and within hours rls subsided and my legs were back to normal. So yes.... I can back you all the way.. They do work for RLS ...

[SueJohnson in reply to Jodelights]

Why are you still on pramipexole if you have buprenorphine which should control your RLS?