Hello Joolsg, there appears to be a word wide lack of fundamental understanding of RLS and the effects of Dopamine Agonists and a total disregard for the research that is already in the public domain. I’m sure that if they gathered the results of the current research and used it as a basis to build their own research on in a coalition it would save a great deal of wasted time and money. Are they all to proud to work together or just to stupid not realising that every time DAs are prescribed they set a potential time bomb ticking. ⏰ Perhaps I’m just niece (if that’s how it’s spelt )
I couldn’t agree more! People think it’s just a little restlessness and the person just had to move a little. I have heard so many people say, “oh I have restlessness in my legs” The truth is that they don’t have a clue as to what it really feels like! When I hear that I just respond, “no, that is not what it is like” grrrrr!
We all agree on this. Even doctors don't understand that fidgeting is NOT RLS.Maybe we can all decide on a new name. I'm not keen on Willis-Ekbom either.
I agree there should be a new more descriptive name for RLS. My legs have always jerked so it’s easy to say PLMD. Periodic Limb Movement Disorder. Though a bit of a mouthful. But much more difficult to describe RLS without the jerks. I know what it’s like because mine always starts with a couple of minutes of it. All I can come up with is ‘Need to move legs disorder’. Not very good eh? Come on let’s all try to find a good snappy one. Even if it’s only for us as it probably wouldn’t get changed by the medical profession.
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