RLS manifesting as headache/dizziness - Restless Legs Syn...

Restless Legs Syndrome

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RLS manifesting as headache/dizziness

Joolsg profile image
8 Replies

Very depressing Indian study on RLS manifesting as headaches.

The only good thing about the research is that it establishes head aches and dizziness as part of RLS.

Due to be published in 2025.

All patients were treated with dopamine agonists! Even though some showed signs of anaemia & could have resolved symptoms with iron therapy.

We clearly have a long, long way to go in stopping dopamine agonists as first line treatment.

wjgnet.com/2222-0682/full/v...

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Joolsg profile image
Joolsg
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8 Replies
HipHop1972 profile image
HipHop1972

Hello Joolsg, there appears to be a word wide lack of fundamental understanding of RLS and the effects of Dopamine Agonists and a total disregard for the research that is already in the public domain. I’m sure that if they gathered the results of the current research and used it as a basis to build their own research on in a coalition it would save a great deal of wasted time and money. Are they all to proud to work together or just to stupid not realising that every time DAs are prescribed they set a potential time bomb ticking. ⏰ Perhaps I’m just niece (if that’s how it’s spelt )

HipHop1972

MrCrow profile image
MrCrow

The name "restless legs" needs to be phased out. Clearly any body part can be affected.

Gmc54 profile image
Gmc54 in reply toMrCrow

Yes, and it also sounds so wet and wappy, an insignificant affliction that is hardly worth a gp's time and effort. Grrrrrr!

Merny5 profile image
Merny5 in reply toGmc54

I couldn’t agree more! People think it’s just a little restlessness and the person just had to move a little. I have heard so many people say, “oh I have restlessness in my legs” The truth is that they don’t have a clue as to what it really feels like! When I hear that I just respond, “no, that is not what it is like” grrrrr!

Joolsg profile image
Joolsg in reply toMerny5

We all agree on this. Even doctors don't understand that fidgeting is NOT RLS.Maybe we can all decide on a new name. I'm not keen on Willis-Ekbom either.

Doped profile image
Doped in reply toJoolsg

I couldn't agree more, it suggests all you need to do is relax and your restless legs will be fine, if only!

Ruffabug profile image
Ruffabug

I agree there should be a new more descriptive name for RLS. My legs have always jerked so it’s easy to say PLMD. Periodic Limb Movement Disorder. Though a bit of a mouthful. But much more difficult to describe RLS without the jerks. I know what it’s like because mine always starts with a couple of minutes of it. All I can come up with is ‘Need to move legs disorder’. Not very good eh? Come on let’s all try to find a good snappy one. Even if it’s only for us as it probably wouldn’t get changed by the medical profession.

SueJohnson profile image
SueJohnson in reply toRuffabug

I like the Need to move legs disorder’ '😀

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Educate yourself on the effects of RLS meds

http://www.sleepreviewmag.com/2018/01/rls-dopamine-agonists-psychiatric-adverse-events/

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