Website for primary practitioners .

[Gibbel]

Can someone tell me if this website for primary practioneres can be used by doctors all over the world - e.g Denmark ?

Gibbel

[Madlegs1]

Could you send a link to this website,please? I don't know of any particular ones for Primary Care Physicians!!

It would be great if they accepted contributions from knowledgeable and experienced patients.

[Gibbel in reply to Madlegs1]

Hello Madlegs1

– information of this website was published on April 29, 2024.

from Massachusetts General hospital and - one of the contributors is John Winkelmann.

My be you can google the site – I am not sure how to send a link without emailadr

Google:

NEW WEBSITE ALLOWS PROVIDER CONSULTATIONS FOR PATIENTS WITH RESTLESS LEG SYNDROME.

GIBBEL

[Madlegs1 in reply to Gibbel]

advances.massgeneral.org/ne...

[ChrisColumbus in reply to Gibbel]

I believe that you're talking about rlscurbside.org/ which Joolsg flagged up early this year:

healthunlocked.com/rlsuk/po...

It looked at the time to be only available to US doctors, but that may have been wrong or it may have changed.

I suggest that you ask them by using their Contact Form:

rlscurbside.org/contact-us/

[Mongolia2020 in reply to ChrisColumbus]

I contacted them to ask if my Dr in New Zealand could contact them and they said “Yes.”

[ChrisColumbus in reply to Mongolia2020]

Good news! Joolsg FYI - although I now note below that Mon is a member of rls.org, don't know whether that helped...

[Mongolia2020 in reply to ChrisColumbus]

I think it was A$40 ( I think it was NZ$60 to join. I was already a member. My GP in NZ was quite nervous about prescribing it for me (I advocated for it, taking RLS foundation documents with me). I have bradycardia so I think he was extra concerned as my heart rate kept dropping to 35 bpm at rest at times when I was on coedine. So when I saw that they had set up curbside, I suggested he contact them. However he didn’t think they would respond so I contacted them myself to ask. He did tell me had had trouble registering though.

[Joolsg]

You can ask. But I suspect it's for US doctors, as it's funded by rls.org.

[ChrisColumbus in reply to Joolsg]

Forum member and Australian doctor RLSLearner posted 6 months ago "well I seem to be 33% of the doctors using rlscurbside"...

[Joolsg in reply to ChrisColumbus]

Ha ha. So they do give advice outside USA.I've always been astounded that the top US RLS experts ALL respond to email enquiries within hours!

Meanwhile, here in the UK, even if we pay privately -neurologists rarely, if ever, reply to emails.

[ChrisColumbus in reply to Joolsg]

...and of course two thirds of UK sleep centres didn't reply to either emails or letters when written to earlier this year. (I must check how many reply to the follow-up...)

[Mongolia2020 in reply to Joolsg]

I contacted them to ask if my Dr in New Zealand could contact them and they said “Yes.” I am a member of rls.org as they accept membership fees from anywhere in the world.

[Joolsg in reply to Mongolia2020]

Excellent. I am also a member of rls.org.I wonder if any UK neurologists or GPs would use it? Many refuse to look at the research we show them. But it's another weapon in the arsenal.

[RLSLearner]

I have just gone back to RLScurbside. A few more post there since I last checked - I didnt get any notification, it is not the most modern/user-friendly forum. Did a handfull of posts to help pad it out. Hopefully it continues to develop and get known - but the user experience will not help.