Therapulse: Is the effect of Terrapulse... - Restless Legs Syn...

Restless Legs Syndrome

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Therapulse

Mariuni profile image
15 Replies

Is the effect of Terrapulse such that I don't have to worry about the symptoms only while it is working? Or do the symptoms subside for a while even after the operation has stopped?I tried using it for the first time yesterday, but I can only feel the effect while it is working. If you have used it, please let me know.

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Mariuni profile image
Mariuni
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15 Replies
Pippins2 profile image
Pippins2

I only feel that effect whilst using it and although it helps when my symptoms are mild and will allow me to sleep it doesn't help me when RLS is severe

Elisse3 profile image
Elisse3

Same for me as Pippins has said.

Mariuni profile image
Mariuni

ありがとうございます!これは15分で切れる前に眠れなかったら、さらに追加してもいいのでしょうか? Google Translate: Thank you! If I can't fall asleep before it runs out in 15 minutes, can I add more?

Pippins2 profile image
Pippins2 in reply toMariuni

It lasts longer than 15 minutes probably for around an hour and a half .I put it on and just let it run out of battery whilst I am asleep

Rayme profile image
Rayme

for me it's just as for Pippins and Elisse, so I barely ever used it.

Allyp69 profile image
Allyp69

I have used Therapulse on and off for over a year. I only use it for about 10 minutes on the calf. For me the effects are after I've removed it...no more RLS that night. I take it to the cinema etc and use it discreetly if I need to..only have one but it really works for me. Hope it will help you 🙂

Mulberry100 profile image
Mulberry100

I agree with the previous posts, however, I find it helps when I am waiting for my medication to kick in and allows me to wait to take at the correct time instead of the temptation to take medication earlier than recommended. I use mine, quite often on car journeys, as a bit of distraction.

Elisse3 profile image
Elisse3 in reply toMulberry100

I also do that use it before it’s med time but it only helps again if the RLS hasn’t ramped up.

50568789 profile image
50568789

I only use it if RLS starts as I'm trying to get to sleep, or wakes me up. 10 minutes or so on either leg, sometimes I fall asleep while still on. The only way of knowing if it's been effective is if no RLS after taking it off. I've been using for some time and so far a 100% success rate and it's been a game changer for me.

Sazzybeak profile image
Sazzybeak

Hi Mariuni,

I’ve recently bought one and find it helps after about 3 minutes and the crawling-veins crampy feeling stops completely after that. I’ve used it in the night a couple of times too and it sends me back to sleep quickly. I also take 7.5mg amitriptyline every evening for generalised hyperactive tendencies and 30mg codeine before bedtime every 3 to 4 days, which somehow trains me to relax and sleep through the night. I do think my brain has a habit of creating the restlessness somehow, and it’s made worse by too much physical or mental activity. I’ve had it since aged 13. I tell people my nerves are overactive.

So much of what we chose as treatment requires a belief that it’ll work. Read Bruce Lipton’s book called The Biology of Belief to understand how important this is. Our nervous system is very complex.

I hope the Therapulse works well for you. X

SueJohnson profile image
SueJohnson in reply toSazzybeak

Welcome to the forum. You will find lots of help, support and understanding here.

Amitriptyline make RLS worse for most so you might want to ask your doctor for a substitute and if you list it here I can tell you whether it is safe for RLS or not.

Have you had your ferritin checked? If so, what was it? This is the first thing your doctor should have done. Improving your ferritin to 100 or more helps 60% of people with RLS and in some cases completely eliminates their symptoms. If not when you see your doctor ask for a full iron panel. Stop taking any iron supplements including in a multivitamin that has iron in it 48 hours before the test, don't eat a heavy meat meal the night before, fast after midnight and have your test in the morning before 9 am if possible. When you get the results, ask for your ferritin and transferrin saturation (TSAT) numbers. You want your transferrin saturation to be over 20% but less than 45% and your ferritin to be at least 100. If they are not, post them here and we can give you some advice.

Does the codeine control your RLS?

I have the impression you are not taking any medicine for your RLS except the codeine. If you find you do need medicine in the future above all don't let your doctor prescribe a dopamine agonist like ropinirole (requip) or pramipexole (mirapex). They used to be the first line treatment for RLS, but no longer are because of the danger of augmentation. Instead ask your doctor to prescribe gabapentin or pregabalin.

Check out the Mayo Clinic Updated Algorithm on RLS which will tell you everything you want to know including about its treatment and refer your doctor to it if needed as many doctors do not know much about RLS or are not uptodate on it at Https://mayoclinicproceedings.org/a...

Some things that can make RLS symptoms worse for some people are alcohol, nicotine, caffeine, sugar, artificial sweeteners, carbs, foods high in sodium(salt), foods that cause inflammation, ice cream, eating late at night, oestrogen (estrogen) including HRT, dehydration, MSG, collagen supplements, electrolyte imbalance, melatonin, stress and vigorous exercise.

Some things that help some people include caffeine, moderate exercise, weighted blankets, compression socks, elastic bandages, masturbation, magnesium glycinate, fennel, low oxalate diet, selenium, 5 minute shower alternating 20 seconds cold water with 10 seconds hot water finishing with hot water for another couple of minutes, hot baths, distractions, CBD, applying a topical magnesium lotion or spray, doing a magnesium salts soak, vitamins B1, B3, B6, B12, D3, K2, if deficient, and potassium and copper if deficient, massage including using a massage gun, vibration devices like therapulse, using a standing desk, listening to music, meditation and yoga. Keep a food diary to see if any food make your RLS worse.

Many medicines and OTC supplements can make RLS worse. If you are taking any besides the Amitriptyline and you list them here, I can tell you if any make RLS symptoms worse and if so may be able to give you a safe substitute.

Moonwalker1967 profile image
Moonwalker1967

Hi, I have not had fantastic results with the Therapulse. Not sure exactly where to place it. I have placed it under my knees. Any suggestions welcome, pls.

Elisse3 profile image
Elisse3 in reply toMoonwalker1967

I put mine just below the back of the knee. so i feel the pulse on the calf. Hope it can work for you as it’s very helpful. Have you tried different pulses ? I have found no 8 works best for me.

Moonwalker1967 profile image
Moonwalker1967

Thanks for that. I am still trying.

Elisse3 profile image
Elisse3 in reply toMoonwalker1967

Fingers crossed for you.

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