4.10 a.m. and up again!

[Danni54]

I am soo tired of this ! I said that I hate to moan and I really do but I'm in such pain and so tired and my toes and leg's hurt! How's that for a moan ?! I think that I will sit in my Dr.s Surgery until they really help me ! I don't know whether Buprenorphine is expensive but I know that cost is really important to Dr.s now and in Scotland, restrictions have been put in place regarding prescribing of certain painkiller's. As with everything else it's cost over wellbeing! This is a sad world !I want to thank all the people on this forum for their help and advice and I'm going to follow up on some suggestions. I have read that a few weird people are accessing forum's on HealthUnlocked . Is this true and if so.....what is wrong with people?!

Take care all. I am off to cuddle my hot water bottle!

[Hidden]

Danni, think about taking some iron right now.

[Joolsg]

Buprenorphine is very, very cheap. Cheaper than mostother opioids for the NHS.

[purple-flowers]

iron hasn’t helped me. Am on 900 Mg of Gabapentin plus 2x .088 pramipexole per day. Still bad. Took extra 300mg of Gabapentin at 3.30am this morning. No help. Walked around half asleep all day. It’s a hideous affliction.

[Danni54 in reply to purple-flowers]

It is unspeakable and I wish that people and the medical profession would understand how horribly it affects us . It's now even affecting my finger's....as of last night . Iron hasn't helped me either...so far! The Dr. says it takes time ! Huh! I feel so weird with the Baclofen and lack of sleep and everything hurts.Thought I would say that purple is my favourite colour! Thinking of you. I do find the compression socks help ....a bit. Last night I joined the RLS Society so I will, hopefully, hear from them tomorrow. Jools, on this forum is really helpful and knowledgeable.

Please take care. Thinking of you and all here who are suffering.

[purple-flowers in reply to Danni54]

Purple is gorgeous! It is such a debilitating illness. The lack of sleep is the worst. I had a major operation in March this year. The RLS was made worse by the drugs the hospital put me on. One night I walked all night up and down the corridor. My abdomen was cut open from top to bottom for the op. I was in agony from the surgery and the RLS was unrelenting. The surgeon did not understand RLS. As you have said, not many in the medical profession understand how horrible it is. They say ‘get up and take your mind off it’. Nothing but nothing takes your mind off of it. I find it starts in one foot. It goes after a couple of hours then the other foot starts. I get it in my arms but never in my fingers. I don’t know how to give you comfort but there are many different pills and patches that could possibly help. Unfortunately they all have side affects. Interestingly mine is inherited from my late mother. It mainly affects females. Please persevere with your GP. Ha ha! I know that it is so difficult to get an appointment. I do wish you luck and hope to goodness you will eventually find a drug that gives you some relief.

[SueJohnson in reply to purple-flowers]

Unfortunately it won't help much until you are completely off the pramipexole and your symptoms have settled.