Perpetual RLS Hangout Zoom Meeting - Restless Legs Syn...

Restless Legs Syndrome

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Perpetual RLS Hangout Zoom Meeting

bumblebee_tuna profile image
9 Replies

I was thinking....

I don't know if the population size is big enough, but we could setup a perpetual zoom meeting, that anyone can join, something like a one big support group.

Good/Bad idea?

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bumblebee_tuna profile image
bumblebee_tuna
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9 Replies
Moonwalker1967 profile image
Moonwalker1967

Great idea

Kakally profile image
Kakally

👍😃

Mipilimi profile image
Mipilimi

That would be great! Let’s organize something.

👌🏽👌🏽👌🏽

Simkin profile image
Simkin

When I joined the forum I was told NOT to give my proper name, so I use Simkin, because the forum was all supposed to give a bit of anonymity.So am not sure how the zoom, when you see who everyone is, will work?

Simkin

Nikon- profile image
Nikon- in reply toSimkin

We could wear covid masks if we prefer to remain anonymous 😊 just a thought

Simkin profile image
Simkin in reply toNikon-

🤣🤣

Drls profile image
Drls

Hello - you can choose to take part on zoom without your face showing and you can change the name that comes up ….

Or could we have more of a chat room where members can ‘chat’ or message at anytime? Where they can then keep the anonymity of the site but have more if an immediate response - especially when people are suffering at night and can connect with with others also walking the floors….

Somethings to be considered I think - I’m not sure who makes these decisions though!

bumblebee_tuna profile image
bumblebee_tuna in reply toDrls

Yes I think chat will be a good way for a lot of people to interact, especially when it's 4am in the morning and you don't want to show your face or wake up the family. But then, if it's someone you trust that is joined you can switch on to voice/video if needed.

Merny5 profile image
Merny5

I think that is a fabulous idea!

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