Welcome to the fear of night time club - Restless Legs Syn...

Restless Legs Syndrome

21,480 members15,152 posts

Welcome to the fear of night time club

Histology2020 profile image
5 Replies

Im a long time sufferer of this terrible RLS. To be quite honest, its worse than breast cancer, which i am in remission. RSL i ask myself is it ever going to stop!!Day & night in my legs and arms, it has completely ruined my life, in so many ways. The specialists, both NHS and Private cannot cure it. Tried all kinds of meds, sleeping tablets, accupuncture, excersise, endless blood tests nothing works. So the future looks very grim.

Written by
Histology2020 profile image
Histology2020
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Madlegs1 profile image
Madlegs1

Do you keep a food diary to indicate if any food ,drink or medications may be triggering you RLS?

SueJohnson profile image
SueJohnson

Please tell us what you have tried and what your experience was it.

Joolsg profile image
Joolsg

There is treatment that works for most people, if you can find the right doctor and the right combination of meds.What meds are you taking now, including over the counter medication?

Have you had recent blood tests? If so what actual numbers do you have?

TheDoDahMan profile image
TheDoDahMan

Low-dose (10 mg/day) methadone was a last-resort medicine for me, but once on it, my life was completely turned around and now I'm a happy camper. After 5 years I have still not needed to increase my daily dosage.

Histology2020 profile image
Histology2020

Hi DoDahManForgive my ignorance but isn't methadone given to herion addicts to wean them of the drug??

You may also like...

Gabapentin and night time waking

my RSL is ok in the day and mostly ok in the evening and when I get in bed to sleep. But my RSL...

Is there an optimum time of day/night to change Neupro patches?

I've had RLS for 25 years, and been on Pramipexole plus Temazepam for 8 years, which generally...

Night time Codeine.

occasionally take an extra tablet, if I am having a particularly bad run of RLS. Advice please x

Night time eating

Over the past few years my RLS has got worse. I take Clonazepam 1mg and I really don't want to go...

Any advice gladly welcome

first time posting on any group forum. I have had RLS since I was a teenager. (I am turning 50 this...