Long time no post

[nick-the-turk]

Sorry all for not replying to posts etc for a good while now but I do read most articles but I'm sure for all its been a nasty year with covid let alone RLS and being a post person im a key worker and most of my time has been trying to keep my family safe with some having serious health conditions !. SLEEP is still a major issue 2 maybe 3 hours a night but managing some how and I'm asking if there is any major changes in RLS being confirmed as a disability being it last longer then 12 months and has a major impact on everyday life regards to you all and stay safe

[Madlegs1]

Great to hear from you again. I've often referred people to your threads as an example of how to cope with withdrawals.I'm sorry to say there seems to be no new advances in sociomedical compassion for RLS sufferers.afaik.

Good to hear you are still alive, though- and suffering, along with the rest of us!

Commiserations about Leinster/ Exeter!😪

Cheers.

[Joolsg]

Hi Nick,That's not enough sleep. Have you considered adding a small dose of opioid?

Like me you had bad augmentation & traumatic withdrawal and Dr. Buchfuhrer is of the view that Alpha2Delta ligands like gabapentin and pregabalin aren't as effective when that's happened. Gabapentin and pregabalin did nothing for me.

I've been off here for a few weeks as I have been researching RLS in the UK as part of a campaign to have it taught at medical school so GPs will at least know the basics. It should absolutely be listed as a disability under the Equality Act. MS is automatically covered and MS is nothing like as life changing/threatening as RLS ( I have advanced highly aggressive MS as well & I know which is worse.)

So- perhaps ask your GP to prescribe low dose Temgesic/Buprenorphine or Targinact as I think you'd get more sleep and hopefully, if the campaign gains momentum, RLS will be listed as a Disability under the Equality Act.

Stay safe, take care.

Jools