Damn Rls I hate you

[brickscrawling]

I've had I've had restless leg syndrome since I was a little girl unless the nightly torture for me for years it comes and goes but most of the time it's on and as I've gotten older it seems to have gotten worse I'm on mirapex can I take two .25 mg 2 hours before bed but most nights I seem to have to take two pills I also take Adderall early in the morning and sometimes in the afternoon due to the fact that the mirapex makes me so darn tired & adderal has dopamine in it I believe that it helps my RLS as well as depression has anybody else had any luck with either of these or the combination of the both. some nights my restless leg syndrome is so bad I'll eat mirapex like candy until it goes away I know that sounds terrible but if I didn't have mirapax I would have probably committed suicide by now. taking extreemly hot bath helps and sleeping backwards in my bed helps too. If I was lucky enough to win the lottery I would make a device that would robotically move my legs while I slept and hold them up in the air because when they're up in the air they seem to not hurt at all does anybody else experience this

[Hidden]

I can't work out exactly how much pramipexole, (Mirapex) you're taking but it appears too much. The official maximum for RLS is 0.75mg. RLS experts suggest no more than 0.25mg maximum.

It's also best to take it regularly, i.e. the same amount every night, not "like candy".

Pramipexole is a potent and potentially dangerous drug, definitely not candy.

Adderall, i.e. Amphetamine with Dextroamphetamine ia also a potent central nervous system stimulant. It sounds like you're taking differing amount of this as well.

As well as being addictive, as a strong stimulant, Adderall is probably making your RLS worse.

It's possible that the pramipexole is also making your RLS worse, a condition known as (dopamine agonist) "augmentation".

If a doctor has enabled you take this combination and in the amounts you're taking them they would be utterly irresponsible.

The best thing you could do is to withdraw from both the Mirapex and the Adderall.

To do this you need to see a doctor. Withdrawing from both these drugs can be very difficult.

There are other medications for RLS that don't cause augmentation, i.e. lyrica, neurontin or horizant. You would have to get a prescription for one of these and take the exactly the amount prescribed and when.

Here is some information about augmentation.

healthunlocked.com/rlsuk/po......

Please see a doctor.

[Pidieoson]

Hi im a newbie to the site but i wanted to let you know ive had alot of personal success using a blood pressure cuff (from ebay) and a golf ball on my foot. It sounds silly but i put the cuff around my foot and the golf ball i sit just at the base of the ball of my foot where the arch is and i pump up the cuff and it pushes the golf ball tight into my foot. It seems to stop that dreaded pulse coming every 20 seconds. Sometimes i have to move the golf ball around a bit with a few attempts but i eventually get it. Another item i have that has helped it a pair of foot acupuncture massage shoes (also ebay). I sometimes just put them on and walk around for a bit, they hurt a bit in a weird way but the help too. I found if i stay clear from sugar a few hours from bed time this also helps. I hate rls so much it has had such a big impact on my life to the point of considering suicide. There might be more professional treatments out there but these self made home remedies have saved me so much, i hope they help even for a few good nights sleep

[Joolsg in reply to Pidieoson]

You should consider posting this as a new post so everyone can see it. Sounds similar in principle to the Restiffic foot band- applying tight pressure to the arch of the feet. It helps some people but it’s expensive so your suggestion might be cheaper.

Glad it’s helping you.

[Hidden in reply to Pidieoson]

Hi, I'm glad your strategy is helping you. I imagine that it only works while you're actually applying the treatment. . There are a few ways of relieving symptoms once they've started like this.

Better still would be a treatment to prevent symptoms before they happen.

I wonder if you're aware that there are both non-pharmacological and pharmacological medical treatments that can do that?

As Jools suggests try writing this as a new post, with a bit more detail of your experience and you'll get more responses relevant to you.