rls-insomniac

Hi. I had a cortisone injection last year as I have a painful Achilles tendon injury. Although I was withdrawing from ropinirole at the time, I don't recall that it made my symptoms any worse. I was in pain for about 4/5 days after though so maybe that overrode some of the RLS symptoms.

puzzler1 in reply to rls-insomniac

Thanks for your reply. I've only managed one hours sleep each night since the injection but perhaps it's something else. I'm reducing my pramipexole dosage (very slowly) so maybe it's related to that.

Thanks again

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rls-insomniac in reply to puzzler1

I agree with Pam. When I was weaning myself off ropinirole, initially it wasn't too bad but as the dosages reduced my RLS was through the roof with little or no sleep. Keep plugging away. It will get better. All the best.

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Joolsg in reply to puzzler1

I’d say it was more related to pramipexole withdrawal. RLS goes crazy with each dose reduction.

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Pam34

I’ve had several in my foot and it’s never bothered my RLS.

puzzler1 in reply to Pam34

Thanks Pam, that's encouraging because I need the injections from time to time. I just don't know why the RLS has flared up so badly since the jab.

Thanks again

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Pam34 in reply to puzzler1

I see from your previous post that you are suffering from augmentation and that you are reducing the prami slowly. I suspect it’s more to do with that. Have you been given anything to help you through the withdrawal?

Pam

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puzzler1 in reply to Pam34

No, nothing yet but I’m in touch my doctor who is helpful but hasn't suggested anything other than agreeing to starting Gabapentin. I think I’ll have to press her for some sleeping pills. I’ve managed to reduce the prami from 6 tabs to 3 over a 9 month period. Also a week ago I started taking thyroxine to raise my level. Do you think that might be the cause.

Thanks for your interest.

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Pam34 in reply to puzzler1

I can’t speak about thyroxine but I still say the fact that you are withdrawing from a dopamine drug is the most likely cause. This will get harder each time you reduce the dose. You’ve done really well to get this far, it’s important you don’t give up now.

The gabapentin won’t help until you are well over the withdrawal. My GP prescribed Tramadol to help me through the worst of it and I found 50mg gave me a couple of hours sleep here and there. I’m now on pregabalin and have been for 2-3 years. Let me assure you there is life after prami but it’s bloody hard getting there.

Many of us on here have been through it. Don’t be afraid to reach out if you need support.

Pam

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Jumpey

I had one in my plantar fascia with no adverse effects on my RLS. Good luck.x

Orangebox

With recent RLS (over thighs) I’ve used several things to help

- brushing thighs, sole of feet with a rough sisal-mit (hand-glove). Even at night when I cannot sleep.

- rolling wooden massage-balls under feet

- ice packs

- reducing coffee/sugar

-walking

-using rebounder, which helps a lot.

All help with pain.