My GP referred me to a movement specialist for my RLS. I had already been referred to a neurologist but waiting lists are much longer & I only waited 6 weeks for my appointment with the movement specialist.
It ended up being a telephone consultation due to COVID-19 but essentially he took me off ropinerole & put me onto neupro patches. So apparently ropinerole only gives relief for RLS for 6-8 hours after taking. The horrific side effects of you suffer them are because you get the full dose in a quick hit, & if you suffer during the day whilst sitting at your desk, or traveling, or visiting the cinema etc there is no coverage in your system.
The patches are apparently 24 hour coverage, the dosage is released slowly over that period so in addition to being symptom free around the clock, all the horrific side effects I was suffering have vanished. I’m on week one && the dosage has had to be increased but I’m starting to adjust & beginning to feel better. Supposedly augmentation is less likely with these too.
I’m trying not to get my hopes up as it sounds too good to be true. No RLS symptoms. No sickness, headaches, dizziness & constant heavy feeling from the medication. No having to delay taking my tablet until I’ve finished my meal & wine in a restaurant because I can’t eat or drink alcohol once I’ve taken it because I’ll throw up. No having to stand up by the table in that restaurant, or stand at the back in a cinema or theatre because my legs are on the move!
Life would be normal! I’m 7 days in & keeping everything crossed! Anyone else on these patches?