Dear Madlegs1, Thanks for posting. I am interested in reading this as Dr. Buchfuhrer has suggested that I try this instead of oxycodone. I don't know how we stand in the UK regarding this drug but Dr. B said it has fewer side effects. I am still mulling over Dr. B's suggestion but have not come to any decision as yet. Thanks again for keeping us up to date.
Dear Parminter, I was asking Dr. B what he could suggest as I was getting depression from oxycodone. He suggested other opioids (methadone, hydromorphone, etc) but he then said "However, the best choice would be to change to Belbuca which is a partial opioid drug which tends to have very few side effects and is quite effective. However, most doctors are not very familiar with this drug (which is in a safer schedule 3 category and can be written with refills) and it tends to be very expensive (you will have to check your insurance coverage for the drug)."
He then went on to advise that I might benefit from an iron infusion even though my ferritin was 189. I was surprised by this as I thought (perhaps wrongly) that my type of familial RLS did not benefit from this.
You said you were about to alert me as to what had happened to you. Private message me if you want. I hope you are OK.
I have been using buprenorphine patches for several years now and find them very effective. I am in the UK, I don't think that there is any problem with prescribing.
Perhaps several of us have been alerted to the efficacy of buprenorphine by Shumbah's posts, which I found fascinating. (Thank you, Shumbah).
I took a file of information on BUP to my doctor yesterday, because I believe that methadone may be causing depression. (Jelbea brought this up last week - thank you, Jelbea!).
He was very concerned, as he believes I might be on the way to dependence on methadone. In the end, after a very fraught consultation, he has decided to write to Doctor Buchfuhrer about the way forward.
Here are the articles I took to him, which are very convincing - to me, at least.
I hope any of us who are permitted to try this drug report back to all.
It is expensive relative to other drugs, and there is no way my insurance would consider paying for it - it is rather 'new news' and not in any guidelines.
In the USA there is Butrans, Subutex, Belbuca and Buprenex.
Then, together with Naloxone, there is Suboxone and others. Temgesic everywhere, I think.
Quite a lot - it was first made decades ago, so it has been around for a long time. Not a newbie, so they must be aware of the worst hiccups. It does seem quite remarkable.
The market is growing because it seems to be the very best opioid for helping addicts, much more successful than methadone.
Of course, the dose for RLS would be tiny. But still expensive.
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